#5306 04-26-2005 04:03 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Ed and Susan-
Damn, that was a shocker! Our hugs and prayers are with you. We'll be lifting you up on May 1st! Love, Kris and Mark
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#5307 04-26-2005 07:21 AM | Joined: Nov 2004 Posts: 90 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2004 Posts: 90 | Dear Ed and Susan,
I too was shocked to read your post! My prayers are with you both. Keep us updated OK?
Take care,
Shelley
Caregiver to husband, Ron. Throat cancer, Stage II. No Chemo or Surgery. Completed 35 Radiation Treatments in November 2004.
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#5308 04-26-2005 10:53 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Ed and Susan
You are in my thoughts.
With love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#5309 04-26-2005 11:46 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Ed and Susan
We had no idea of what you guys were dealing with right now.
Ed I am not a praying kind of person ..positive vibes are more my style BUT.. To whomever is in charge of this stuff...make it be OK for these guys....please.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#5310 04-26-2005 01:33 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Ed and Susan,
Oh my god, this is the last thing I wanted to hear after being off the board for almost a month. I can't believe this is happening to the two of you. May 1 is a Sunday. Is that the day her surgery is scheduled and what are they planning to do? Will they do a biopsy and diagnose it it immediately and do neck dissection as required or will she have to wait for results. I cannot imagine the trauma the two of you are now going through. Charlie and I are sending all the best vibes to both of you. Get her back on the board. She must be 'scared to death'. She needs to talk about it.
Your friend,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#5311 04-26-2005 01:34 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Dear Ed and Susan,
Like everyone else, I was stunned to read your post. You will both be in my thoughts and prayers, particularly on May 1st. Good luck to Susan and you on surgery day and let's hope for a negative test result. All the best, Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#5312 04-26-2005 04:17 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Ed,
I don't usually jump on these posts, but my best wishes for both of you. And Cindy, what an inspiring and uplifting post.
Glenn | | |
#5313 04-26-2005 04:39 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Ed and Susan,
Oh, man. I'm kind of without words at the moment. You guys are in my thoughts. I know this sounds stupid, but please try to remain calm. That they move around when he palpatates is good, so try to breath a little easier with that information. I was freaking out a while back when I developed a hard lump, I ran to the doc and she put me at ease because it too moved around.
Please let us know how the doc appointment goes, and don't hesitate to contact me if there's anything I can do. All my best.
Dave
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#5314 04-26-2005 11:10 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Ed and Susan,
I, too, was shocked to read your post. I'm sending you all my positive thoughts for nothing but good news on May 1st. Please keep us posted and know that we're here for you two.
Big hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#5315 04-27-2005 11:40 AM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Ed and Susan,
I hardly know what to say. I've written so many replies to you only to delete them all. I truly am speechless. All I can think to do is send you some good vibes and huge hugs across the miles.
Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
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