#5268 04-07-2005 10:36 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Aug 2004 Posts: 100 | How do you guys know what your one year mark is? Is it 1 year from diagnosis, end of treatment or one year from a clear scan? Rod was diagnosed March 30,04. About 2 weeks into tx, all lymph nodes were down. He finished radiation & chemo July 12, 04 but didn't have his pet scan until November 1. Do you start from Nov 1? I heard different things from different people so I'm curious. Thanks! 
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#5269 04-07-2005 10:54 AM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | I was wondering the same thing. :-)
Great question.
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#5270 04-07-2005 12:11 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | My oncologist tells me it's up to me (or you). Being conservative I personally use the last day of treatment. Some here use the date of diagnosis.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#5271 04-07-2005 02:34 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | Personally it makes the most sense to measure from the day they tell you you are cancer free.
I can't wait to hear those words....
Cindy
PS... Gary, you are a wealth of information. I just wanted to thank you for your input.
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#5272 04-07-2005 11:04 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | I also use the last day of treatment (Nov. 6 for me) as my anniversary date. My doctors all seem to use the same measuring stick (last day of treatment) but you can make it what you want. Let's hope that we all have MANY anniversaries to celebrate!
Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#5273 04-08-2005 12:08 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Aug 2004 Posts: 100 | I thought that too, the last day of treatment.Rod finished in July but didn't have a pet scan until November. So July 05 for a one year mark sounds pretty good to me! Yes I agree...will pray for many anniversaries for all! 
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#5274 04-08-2005 12:29 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Cindy,
thank you. I am sorry if I sounded a little harsh on you about the dogs. I have 4 dogs myself and I am overly bonded with them. I am glad that you had a positive outcome and that Harry understood.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#5275 04-08-2005 12:33 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | littlep, I use the last day of rad/chemo treatment. My surgery was later, but that just confirmed that the cancer was destroyed. Same as a CT scan that shows no activity. So end of rad/chemo does it for me. Besides, that was my wife's birthday, so it is easy for me to remember.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#5276 04-08-2005 06:19 AM | Joined: Aug 2002 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2002 Posts: 76 | Dan's doc used day of surgery, July 31st....2001
Sherrie wife to Dan, Tonsil cancer survivor, Stage IV diagnosed July/2001
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#5277 04-10-2005 08:25 AM | Joined: Jun 2004 Posts: 106 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 106 | Maureen:
My doctor told me I am now a one year survivor, based on the date of diagnosis (same as your friend's, March 30, 04). Of course, that was also the day of the operation when the cancer was removed, although I then did have radiation, which lasted a hundred years until June 12th.
It is all a matter of semantics, I suppose. The main thing is, I am cancer free today!
love, Leena
scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
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