#52306 10-11-2007 07:19 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | apparently.
she's a little better today. i feel a little sick to my stomach suddenly...she was wearing her new jeans which are a levi, size 4. Yesterday they fit her a little on the tighter side, today they looked loose. She wasn't able to eat or drink last night due to pain. I just know that they are probably going to put her ng tube back in. I was surprised that they didn't replace it last week. She will be devastated, but honestly to me it would be a peace of mind, knowing that she was getting all that she needed during this time. I'm not going to say anything to her, I just made her cry last week when I was pushing her to drink the ensure plus. She is getting about 4 of them a day in most days, but she is still so very hungry.
I really thought that when she had the brachy done it would have been so much easier and she would have been much further by now. I guess I didn't take into account the trach and left neck dissection.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52307 10-11-2007 08:46 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Try just some ice-cream and anything else she likes which will give her some calories if not 'nutrition'? Especially if she is actually hungry--that's a good sign!!
MIGHT be the way forward?
Dad just didn't get hungry, so finding him something to eat and trying to tempt him could turn into a battle.
I still swear by the Oragel Max if my mouth's in pain, but I need to eat--10 mins before eating on pain areas, and I can manage it!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#52308 10-11-2007 11:22 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Donna,
I was wondering why Kohl's stock price went up yesterday.
The ice cream diet sounds good. I remember the Ensure had no appeal to me. Has she tried yogurt?
Hopefully the trach will be out at her next visit.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#52309 10-11-2007 04:50 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Jerry,
I forgot to email you today! Sorry.
Can't recall your days off, we have an appt with Kendra on the 15th, if you want to and still are able, you are more that welcome to come with us.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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