#52140 07-26-2007 05:52 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Donna - I continue to be amazed at the wonderful caregiving job you are doing! Your kids sound pretty terrific - hope you told them so, too. Love and the people in your life are important. The rest is small stuff. Glad you will be taking some time for yourself.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#52141 07-26-2007 09:42 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks.
I was so proud of my mom today; when she goes in for rad tx's she takes 1.5mg of ativan, today she only took 1.0mg. She was amazed at herself.
I am getting ready to go and fix her salmon for dinner. I've read that it's not good to eat that too often, but that is the one meal she really enjoys.
I just realized that i have nothing washed for our week away...ed said I should just bring down the dirty laundry and do it there...that's not a vacation-that's starting out with a chore! I want to go and unpack CLEAN clothes, make a delicious margarita and sit down and put my feet up!! That will work best for me.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52142 07-26-2007 10:00 AM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Good job, Donna- enjoy your time away.  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#52143 07-26-2007 01:19 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks Amy! I hope can relax, and not feel so damn guilty!! I told my mom that once she is through tx's and surgery, I will take her to the shore house and we can go to the beach and sit, collect shells, watch sunrises, sunsets....or sit at the house all day.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52144 07-26-2007 04:01 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Donna - so glad to hear of your Mom's progress. You mentioned she only took 1.0mg of Ativan. I guess she's not taking any more stones and bricks, huh? Don't worry about the laundry, just take your swimsuit and a towel. Enjoy the beach! 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#52145 07-27-2007 02:29 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hi Anne-Marie!
She apparently takes her stones or bricks on Mondays, weigh in day. I've alerted my sister...so glad I'll be an hour away!
Ed will appreciate your idea of packing! He always says I should join overpackers anonymous!!
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#52146 07-28-2007 01:52 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Donna - When I told my son about the stones and bricks, he laughed out loud and said he wished he had thought of that! He was always very secretive when I asked him about his weight. I struggled between being a "hovering" Mom and realizing he should be in control of his own recovery. Unfortunately they RO people don't require weight checks to be in the nude. 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#52147 07-28-2007 04:13 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | When I was going through treatment I remember wearing extra clothes, so my weight loss would look less. My trick would have been discovered if I would of had to weigh in nude as Ann-Marie says.  I don't know why we do this, nor is there a sound reason for it now, all I can say is I wasn't thinking straight. Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#52148 07-28-2007 06:19 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | When I mentioned this to my husband he said don't think that didn't cross my mind. He would get so upset in the beginning when they would say your down 6 lbs this week. He would say to the nurse "you go through what I'm going through and then tell me..." LJ
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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