#51428 03-21-2006 01:29 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Gary, What is Marinol? Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51429 03-21-2006 03:57 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 |
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#51430 03-22-2006 01:11 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Thanks, Gary. 1st link did not work. 2nd one did. Interesting. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51431 03-22-2006 02:10 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Just do a Google on "DEA" and it will take you to the home page. Be sure to check the "drug scheduling" section as well Fentanyl is AKA "China White" which is the purest form or Heroin. (DEA #9813, 9833) At that's what they used to call it.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#51432 05-16-2006 04:12 PM | Joined: May 2006 Posts: 22 Member | Member Joined: May 2006 Posts: 22 | Michele, I can relate to all the noises that seemed to bother you. Please do not feel like you are being critical. I stood by my husband's side for ten long months as he suffered with stage 4 tongue cancer and I can tell you about every sound imaginable from snoring that sounded like a loud freight train to my husband waving and talking to strangers in his sleep (side effect from pain meds) to him waking up with severe rapid heart palpatations. You as a caregiver may experience more than you know but you will come through it and not even know how you did it. I was stressed with two young kids and taking care of my husband that I wanted to close the door and scream. I told the social worker that I felt like getting in the car and driving straight across the country by myself. That doesn't mean I despised my husband or blamed him for being sick but caregivers will feel like they are about to lose it on occasion. Welbutrin (an anti-depressant) may help take the edge off if you are feeling down.
You mentioned something about nausea and chemo and the oncologist told us that usually the first or second day after treatment, the patient is OK, it's by the third or fourth day that nausea sets in.
Also about mucinex, I have bad sinus problems and the pharmacist said that all mucinex is is a higher does of Robitussin so it isn't as much as a miracle drug as we thought. My husband was able to put Robitussin in his peg tube at the time so I don't see what harm Mucinex would be, except for the strength of it. That I would ask your doctor first because I don't know what other meds your husband is taking.
OK, I hope I could help in some way. As a caregiver, try to take an hour or two for yourself once and a while. This may refresh you and make you more of a help to your husband. Lisa | | |
#51433 05-17-2006 03:22 AM | Joined: Mar 2006 Posts: 60 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 60 | Michelle- My fiancee had horrible mucus. Mucinix can not be crushed because it is time released, I found that Rubbitussin is the best thing- they make one especially for congestion.
I saw that news report about fentenyl. It was scary because Charlie is one 150mgs.
This might be something that isnt plesant, but when the nausea is so bad that neither pills (even crushed) or liquids will work- they make supositories (I dont think I spelled it right) that you can stick right up your husband behind. Just make sure that they are nice and cold!
Love to all the caretakers!
Delia- Caregiver and fiancee to Charlie ,age 30,(SCC of Larnyx-Stage IV) chemotherapy and radiation- no surgery finished tx:4/7/06 SURVIVIOR!
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