#51361 12-20-2005 05:52 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | I was wondering if anyone could use a portable suction machine? I would be happy to send it if someone could use it.
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#51362 02-03-2006 03:33 AM | Joined: Feb 2004 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2004 Posts: 56 | Tonya,
I was wondering if the machine has a long suction tube. My father can no longer open his mouth more than 1/2 inch. Side effects of the radiation. However, he continues to choke on flem inside that he cannot get out. I was hoping maybe he could relieve some of the mess. Medicare is of no help. Let me know.
VickieM | | |
#51363 02-03-2006 04:11 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Vickie, we rented a suction machine from a Home Health Care firm- the cost was $45.00 a month. It had a fairly long tube[small] at the end of the hose. You could probably use Tonya's and get a replacement suction tube or rig your own, Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51364 02-04-2006 04:57 PM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Vickie,
I looked at David's machine and the tubing has been taken off. Replacements were in a large box of supplies I have already given away. Do you know where to get the long tube you need? I would be happy to send you the machine and would be happy to assist with money for the tubing. Surely it isn't too much. Please ask home health or his doctor where to get the tube and let me know if you can use the machine.
Hugs,
Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#51365 02-04-2006 05:19 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Vickie and Tonya, Any place that sells Durable Medical Equipment [DME to the suppliers] can get replacement parts for the tubing. You just have to tell them which part you need. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#51366 02-04-2006 07:16 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | My insurance company paid for the suction machine. They delivered it and showed me how to use it.
Have your doctor write a script for one and it should be covered.
Is there someone out there that has one and could donate it to her?
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#51367 02-05-2006 02:32 AM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | I believe the part you are looking for is called a "yankur".
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
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#51368 02-05-2006 05:24 PM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Sep 2004 Posts: 153 | Vicki, I hope this info has helped. Like I said, I have a perfectly good machine I would love to send to you. If you can find the tubing or "yankur" let me know how much it is and I will send a check to cover its purchase. It would mean so much to me to be able to help you. Please let me know. I am sending a big bear hug and putting all my strength in it for you.
Please let me know if I can help.
Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#51369 02-06-2006 04:49 AM | Joined: Feb 2004 Posts: 56 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2004 Posts: 56 | Tonya and All,
Thanks so much for all your help. I am going to try to get the script and re-submit to Medicare. Will keep you posted. Thanks again Tonya.
VickieM | | |
#51370 02-07-2006 05:31 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Vickie, be sure you mention the mouth opening issue to his doctors. There is therapy to help with this and the sooner he starts the better.
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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