#51308 10-13-2005 06:48 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2004 Posts: 153 | My brother had a very hard time tolerating many protein drinks. He, too, threw them up. The only thing he ever found that didn't make him sick was called "Severe Mass". I ordered it online from a health food place. As for people...My brother passed away at the end of July. Just one month later the person I thought was my best friend said something to me about him and tears came to my eyes. She said, what's wrong? I said I was just sad about David. She looked totally suprised and said, "I didn't mean to upset you, I thought you'd be over all that by now." It had only been a little over a month since his death. Although she is still my friend I will never see or think about her without remembering those words. As my brother said following surgery, the only things that really matter are family and friends. Times like these will seperate true friends from mere acquaintances. All my love to you and your husband, Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#51309 10-13-2005 06:49 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2004 Posts: 153 | My brother had a very hard time tolerating many protein drinks. He, too, threw them up. The only thing he ever found that didn't make him sick was called "Severe Mass". I ordered it online from a health food place. As for people...My brother passed away at the end of July. Just one month later the person I thought was my best friend said something to me about him and tears came to my eyes. She said, what's wrong? I said I was just sad about David. She looked totally suprised and said, "I didn't mean to upset you, I thought you'd be over all that by now." It had only been a little over a month since his death. Although she is still my friend I will never see or think about her without remembering those words. As my brother said following surgery, the only things that really matter are family and friends. Times like these will seperate true friends from mere acquaintances. All my love to you and your husband, Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#51310 10-13-2005 06:49 AM | Joined: Sep 2004 Posts: 153 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Sep 2004 Posts: 153 | My brother had a very hard time tolerating many protein drinks. He, too, threw them up. The only thing he ever found that didn't make him sick was called "Severe Mass". I ordered it online from a health food place. As for people...My brother passed away at the end of July. Just one month later the person I thought was my best friend said something to me about him and tears came to my eyes. She said, what's wrong? I said I was just sad about David. She looked totally suprised and said, "I didn't mean to upset you, I thought you'd be over all that by now." It had only been a little over a month since his death. Although she is still my friend I will never see or think about her without remembering those words. As my brother said following surgery, the only things that really matter are family and friends. Times like these will seperate true friends from mere acquaintances. All my love to you and your husband, Tonya
Sister of 32 year-old oral cancer victim. Our battle is over but the war rages on. My brother passed July 26, 2005. He was a smokeless tobacco user.
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#51311 10-13-2005 04:01 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Hi Jen, I relate to you totally and how you feel about prioritizing your time. Before my diagnosis I owned two gymnastics/cheer gyms and my husband and I thought it was the best job for me as my day usually began at 4 and I could take the kids with me. I lived at those gyms and became far to involved in the lives of the families that brought their children to my teams. Now, two and a half years later, I coach a small team at my childrens high school, don't own any gyms, don't work outside my home, and I LOVE LOVE LOVE it. My family is stronger, my marriage is stronger, my kids grades are loads better and I feel like I am living my life with a purpose now. Before I was always waiting for tomorrow, now I love every minute of today and fall asleep dreaming of yesterday. Our perspective after cancer is one that only other cancer survivors can understand.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#51312 10-14-2005 12:32 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Oct 2005 Posts: 122 | "Our perspective after cancer is one that only other cancer survivors can understand."
Amen, Minnie!
People were amazed that I packed up the family and moved to Florida while DD was a senior in high school. I had started watching for jobs, planning to move in the summer. Perfect opportunity came in March. She stayed with a friend for two months, is here now and everyone is thriving. Never would have done it if I hadn't already lived through the scariest thing I could imagine.
SCC Tongue T1N0M0\Dx 3-10-03 Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03 3 Year Survivor!
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#51313 10-14-2005 07:10 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | How true, how true Minnie. Gosh, that sums it up! and Good for you Lisa....Take Care, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#51314 10-14-2005 11:46 AM | Joined: Sep 2005 Posts: 36 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Sep 2005 Posts: 36 | Andrea and Angie
Well, we finally got things worked out with the peg tube. It was the fentanyl patch that was making him terribly sick.
As of yesterday he is taking about 3500 calories and doing much, much better.
We have also finished the fitting for the radiation stent so we are ready tostart the radiation simulation this Monday.
One day at a time is the bet way to go.
Thanks ladies
wife to 36 yr old husband diagnosed with SCC on 7/6/05, tongue dissection and radical neck dissection on 7/15/05, 2nd biopsy on 9/15/05 and found carcinoma in-situ. Starting radiation and chemo on Oct 05
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#51315 10-14-2005 11:49 AM | Joined: Aug 2005 Posts: 44 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Aug 2005 Posts: 44 | Lily, Glad to hear that they figured out what was making your husband sick and that he is doing so much better. Keep everuone posted on how things are going.
Take Care Love Terry
Terry | 42 female| base of tongue w/swollen lymph nodes | Dx'd-Feb 05 | Stage IVA T2N2M0 | radiation/chemo 8 weeks finished 3rd week May/05 | bilateral neck dissection 9/2/05 45 nodes all neg.
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#51316 10-14-2005 12:27 PM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | Lily, I am SO glad to hear he's doing better. It's good he is able to take in the 3500 calories. That'll do him a world of good. Hang in there, keep us posted! We're in your corner!
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#51317 10-14-2005 03:40 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Great News Lily,
If he's inputting 3500 calories a day he will do fine. Remember to make sure he's getting protein and plenty of water. As you start your journey down one rocky road remember we are here for you. Ask any question you can think of and someone with similier treatment will respond.
Use the search engine at the top of the page. Just about any question on Oral cancer has been discussed. The more knowledge you have the better off you are. Many of us have traveled the path you are on and survived and he can to!!!
All my best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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