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#50433 10-26-2007 02:44 PM
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DONE !!


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#50434 10-26-2007 05:07 PM
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thanks bill smile


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#50435 10-27-2007 03:52 PM
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Thanks, the list there is growing!


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#50436 12-10-2007 05:16 PM
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Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
#50437 12-10-2007 07:03 PM
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I saw an article in a magazine at the drug store today.....a soap opera mag., which I think was Soap Opera Digest. It had an article by an actress with oral cancer, titled, "The Cancer That Nobody Knows Anything About." I guess she thinks she discovered it....Anyway, I did not buy the mag., but I am going back tomorrow and will either lay out the $5 or take notes so that I can see if the article is on the internet. Does anybody have that mag? You could save me $5!

XO


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#50438 12-10-2007 07:10 PM
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Colleen did an interview for Soap Opera Digest which came out about 10 days ago, perhaps that is the issue that you saw. It's a pretty small format ( like Reader's Digest) magazine. OCF got nice mentions in the article. Her next interview is scheduled with TV Guide for about December 18th release. While she didn't discover it, she does understand that the vast majority of Americans have never even heard of it from her conversations with me. They wanted to get the public's attention, put it on their radar, and as we all know that is a core part of changing the incidence and death rate in the US


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#50439 12-11-2007 02:34 AM
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This is copied from my link above..

According to the newest TV Guide, Barbara will end up getting the same cancer(oral cancer) that CZP had in real life, it was pretty much her idea to do the story, because she was going to bring it up to the producer of the show, but he pitched the idea to her before she even had the chance to do it.

It says that she will get the news on January 2, and pretty much she says that Barbara is all alone when she gets the news, she gets it after being banned from the baptism of her grandchild. She pretty much prays for help right after finding out, she said they were very hard scenes to tape.

There is no word on how the story will turn out at the end because of the writers strike.

--------------------------------------------------------------------------------
Last edited by ATWTFanForever : Yesterday at 06:39 PM. Reason: just wanted to add in the original post what cancer Colleen had.


Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
#50440 12-11-2007 05:58 PM
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This wasn't supposed to hit the news until after TV Guide published the interview on the 17th. Then OCF was going to do a PR story in the media about art imitating life and how many days the oral cancer story will get aired on national TV (millions of viewers per day) over several months, with yours truly as the the technical advisor to the show. It's a great story about how a producer, an actor, and a non-profit come together with an idea to inform the public about a disease, little heard of, through a story line in a daily drama that will last for more than a month and put lots of good information out there (unlike Grey's Anatomy, that got most of the disease issues wrong, had doctors who had never done a glossectomy doing her surgery, and treated the entire subject only as comic relief in the story line, as opposed to treating this killer with the seriousness they show other cancers). The person that put this out in their blog, spilled the beans too early and screwed up the timing of everything. But in this case art will imitate life with Colleen's character getting the disease she personally had herself. There is more than one way to spread the word....especially when you have no money.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#50441 12-12-2007 03:03 AM
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I entered my comments about Colleen appearing on the Morning Show. A little late but it was accepted. Have great day all. Jim


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
#50442 12-12-2007 03:04 AM
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that is a wonderful collaboration and a great way to spread the word. Sorry the news broke early and I hope thw writer's strike ends soon so it doesn't screw things up!


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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