#49964 08-25-2005 08:09 AM | Joined: Jul 2005 Posts: 21 Member | OP  Member
Joined: Jul 2005 Posts: 21 | This is really a request for information so that if the opportunity arises I can feel like I am doing my bit towards raising awareness of our plight. I work for County Govt and one of my co-workers has managed to get them to consider a change in sick leave policy by allowing fellow workers to donate days to my sick bank and not drastically reduce my income. This has attracted the attention of our local friend in cable news and he plans to run a story on this change and my plight. Is there a media pack I can use so that he can at least have the facts on head and neck cancer from our perspective. | | |
#49965 08-25-2005 09:18 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | I will send you an OCF press kit if you email me your mailing address. I would also be pleased to talk with you at your convinience to see that you understand the existing politics of the Oral Cancer issue, and why early detection of a disease, mostly visible to the naked eye in its early survivable states, is rountinely 66% of the time not found then, but as a late stage killer.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#49966 08-29-2005 02:32 PM | Joined: Aug 2005 Posts: 129 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Aug 2005 Posts: 129 | Hi Paul
I also live in Rochester NY and I am on this forum due to my mom having base of tongue cancer. If I can be of any help with the press on this issue-let me know. Prior to being a stay at home mom for my kids I worked in print media in the rochester area and still have my connections. Good Luck
Tami
Tami
Mom has Bot scc stage T1/N1= stage 3 dx 6/27/05 treatment IMRT & chemo (docetaxel, cisplatin, 5FU) ended treatment 8/22/05 Cancer free as of Feb 2006
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#49967 08-29-2005 02:52 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | Press kit set to you yesterday by priority mail. Please let me know how else I may help you.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#49968 09-01-2005 01:57 PM | Joined: Jul 2005 Posts: 21 Member | | OP Member
Joined: Jul 2005 Posts: 21 | Thank you, Brian Package received.
I have been notified the County and CSEA Union have an agreement to allow employees donate vacation or sick time to my bank to delay the time until my pay will be cut in half. This is a wonderful gesture. It is my understanding that cable news station RNews are aware and will seek to report this story. I hope they will at least take the opportunity to raise awareness of this disease. I will update when I know more. | | |
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