#49682 12-05-2004 07:54 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Lisa
no problem I would not suggest something I couldn't say, 14 wks from surgery and my mouth and my brain have very little communication
Sunshine...love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
| | |
#49683 12-05-2004 08:10 AM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | with an addendum
...Believe!
Jack
..........
Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#49684 12-05-2004 02:35 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi all,
Talking of "voices", these are the lyrics of an Aussie hit song by John Farnham, which I tend to think are pertinent.....and a quote from something I wrote in one of my stories - "Support (for cancer victims) appears mostly concentrated on breast, prostrate and brain cancers. It reminds me of that proverb, 'To be seen and not heard'. Yes, boobs, balls and brains were definitely more important than speech!"
John Farhnam - "You're The Voice"
We have the chance to turn the pages over
We can write what we want to write
We gotta make ends meet, before we get much older
We're all someone's daughter
We're all someone's son
How long can we look at each other
Down the barrel of a gun?
You're the voice, try and understand it
Make a noise and make it clear
Oh-wo-wo-wo, oh-wo-wo-wo
We're not gonna sit in silence
We're not gonna live with fear
Oh-wo-wo-wo, oh-wo-wo-wo
This time, we know we all can stand together
With the power to be powerful
Believing we can make it better
We're all someone's daughter
We're all someone's son
How long can we look at each other
Down the barrel of a gun?
You're the voice, try and understand it
Make a noise and make it clear
Oh-wo-wo-wo, oh-wo-wo-wo
We're not gonna sit in silence
We're not gonna live with fear
Oh-wo-wo-wo, oh-wo-wo-wo
ooooh We're all someone's daughter
We're all someone's son
How long can we look at each other
Down the barrel of a gun?
You're the voice, try and understand it
Make a noise and make it clear
Oh-wo-wo-wo, oh-wo-wo-wo
We're not gonna sit in silence
We're not gonna live with fear
Oh-wo-wo-wo, oh-wo-wo-wo (X3)
We're not gonna sit in silence
We're not gonna live with fear
Cheers!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#49685 12-05-2004 03:32 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | I love the song Tizz.....it really moved me. Thank you for sending it.
I like
Voices Raised.........No more silence, No more fear.
Voices......... Voices Of Inspirational Cancer Expertise and Survivorship.
I also like the burgandy color.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#49686 12-05-2004 03:38 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Any good artists on the board?? I would love to see a very simple, plain pic of a round, open mouth with the word "voices" floating out of it. Or the phrase, "no more silence, no more fear".
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#49687 12-05-2004 03:38 PM | Joined: Apr 2004 Posts: 44 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2004 Posts: 44 | Tizz! That is a really cool song (er, lyrics I mean - the tune might very well suck)! I love this post and thank you - you, too Lisa... That was precious.
I actually like the "You're the Voice" slogan. We're trying to get the word out on the progress, research, awareness and rely on everyone to spread the word... What about "You're the Voice, speak out until there's a cure..." (you know what I mean. That one's kind of dumb, but the concept...)
Susan
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
| | |
#49688 12-05-2004 07:40 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Susan,
The song is very powerful, good production; John Farnham has a very strong voice - it should be available for download (gotta be careful now, as we know), and a big hit in Oz for quite some time, BMG Records, and also Robbie Williams covered the song.
Cheers!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | |
#49689 12-06-2004 07:05 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | I like the voice concept, too. How about -
OCF, the Voice of Hope, together we can make a difference. - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
| | |
#49690 12-06-2004 11:32 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | My contribution:
One Voice for Life
Helen
RHTonsil SCC Stage IV tx completed May 03
| | |
#49691 12-06-2004 12:40 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Gosh, they are all such good suggestions, it will be difficult narrowing it down to one!! SMILE!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
| Forums23 Topics18,246 Posts197,130 Members13,317 | | Most Online1,788
Jan 23rd, 2025 | | |
|
