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#49622 09-14-2004 09:17 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi everyone
My hospital stated that I recovered from my surgery so well because I was the best informed patient that they had ever had on the ward.. So well done, Brian, OCF, all of you who helped me to get the right information (and when to ask the right questions)...
Lets all try to help ensure that everyone who travels this road is as informed as we can make them.
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#49623 09-14-2004 10:48 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hi Helen I'm so pleased that you are recovering well. I agree about being well-informed, I believe it helped reduce my fear so that I felt confident and calm. It must have been very difficult for patients in treatment before the internet. Love from Helen 
RHTonsil SCC Stage IV tx completed May 03
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#49624 09-14-2004 11:16 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Helen and Helen!
I saw my doctor today and he is always so impressed with my knowledge and the questions I ask. Not just the medical ones but the emotional side of having cancer. He asked today if I would head up a support group for this area if he provided the patients. He is very impressed with what the Oral Cancer Foundation, headed by our main man Brian, has done so far. I talk more about the foundation then I do about myself at our appointments, lol.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#49625 09-14-2004 12:23 PM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Hello all!
Have been passing around the OCF info cards to hospitals and cancer centers in the Seattle area and all of the docs/nurses/techs that see the site are impressed! Informed consent is a big buzz word for the docs and they really see the value of having the patients and family informed on the many issues that come with this disease. And I can't even begin to express to them the benefits of the support group!!! The hit rate alone on this web site amazes me. Wow, if we could just get more people to join up so the cards can be printed on early detection for dentist's offices just think who could be helped!! Hmmmm, maybe we'll all hit it big in Vegas!! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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