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Joined: Feb 2007
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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Feb 2007
Posts: 790
How long did it take for you to handle spice after a glossectomy/graft? Will all alchohol hurt always? I ca drink guiness and that doesn;t huyrt but any carbination and wine really burn the hell out of my tongue. I never drank much and don't plan to in the future but I did used to enjoy a glass of wine on occassion and i was wondering how long it took to comepletely heal.

THX!


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
Joined: May 2007
Posts: 622
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"Above & Beyond" Member (500+ posts)
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Joined: May 2007
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I was able to use a little (very little) red pepper starting about 3 months ago (8 months post rad). I still am not able to handle very much hot stuff still. I tried some wine a couple of week ago, nope, not happening. Burned and dried me out quite a bit.....


18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
I could drink white wine and beer about 4 weeks after radiation, but not red wine or anything that was slightly vinegary. It took about two years before I could handle red wine and then it had to be low in tannins. Eventually I could drink most reds. Hard liquor I rarely drink but do remember having a gin and tonic and a pina colada while on vacation 6 months after rads. Carbonated drinks I let go flat in refrig and then drank them.

As for spicy, I could never eat hot foods, but could handle mild hot pepers or mild chinese. Now even after all these years, a piece of freshly ground black pepper may still send me through the roof. Forget hot peppers. Some people like Brian, however, can eat the Mexican hot stuff. It takes time and everyone is different. Just keep experimenting.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: May 2007
Posts: 666
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2007
Posts: 666
Same here, almost 3 months out of tx. Wine (even white) is a no go as are carbonated drinks. I am looking forward to the day I can enjoy a glass of good wine again.... well perhaps it does not even have to be a good wine anymore....!

One thing that worked for me was a PIna Colada.... to bad that I never really liked them.

Oh well, it could be a lot worse. At least I am here and able to whine!

Markus


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.

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