#48478 07-06-2007 04:18 AM | Joined: Apr 2005 Posts: 60 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 60 | Petey you are not alone in this! As you know my hubby is going through treatment for positive node, he has already had his neck disection etc in 2005. They have shrunk the node with chemo and radiation, after his treatment is complete (2 more to go!) and he has healed a bit he will have another PET scan, then he is scheduled to have the mass removed. Have you had a PET scan?
GB
Sammie
C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.
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#48479 07-06-2007 04:34 PM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | Petey,
I've had a horrible day today, trying to figure out what to say to you. I think you just bailed me out. Glad to hear that you're doing better.
I too had two nodes involved. They recommended the combo right from the start. They warned me that they "would hit me with all that they've got". As hard as they could so that they could milk me for many more years of returning visits.
I instructed the rad techs to hit me hard every day...I would take all that they could deliver..."just don't miss". If I could do it so can you...trust us on this one.
All the best,
Rob
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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#48480 07-07-2007 01:55 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Petey, This is a case where I think you need to make a stink. You need concurrent chemo and radiation and you need to see the medical oncologist NOW because your radiation is starting now. Since for many cancers, chemo doesn't happen at the same time as radiation, it's quite possible that whoever you spoke to on the phone at the MO's office didn't understand the urgency of this. Call the RO back, call the MO back and keep demanding to talk to someone, and demand that they talk to each other, until this gets solved. It's important that the chemo starts weakening those cancer cells as soon as the radiation starts. It will not be so effective 10 days after the radiation starts.
I understand how hard it is to have all this legal stuff going on on top of everything but your treatment needs to be the most important thing right now.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#48481 07-07-2007 02:16 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Petey,
I guess I scared you with that butt whooping thing, huh? Glad to see you snapped out of it so quickly. Now go help someone that really needs it.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#48482 07-07-2007 04:13 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | David: Yes, as it is only a 4 1/2 hour drive and we have waves in our ocean!
(Do not forget my BIG brother lives 5 miles from you!) LOL
Nelie:
I questioned them on it.
The head tech was going to call the RO and Dr. Chemo to see what is up.
He agreed Friday that they should run concurrent as noted by Gary in his above response..
I also called my MO (surgeon) and left him an update message. All occurred Friday at my 2:30 Rad TX.
These are growing rapidly. I am really worried now if it continues at this rate. I was hoping the boost of rad in the two locations is causing this.
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#48483 07-07-2007 06:24 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Good for you for questioning, Petey. Keep it up until they get you in for chemo right away!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#48484 07-11-2007 02:51 PM | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | Petey,
You poor thing. What is going on? Overload? You just need to sort it out. Too much loaded in one place. Ya know my daughter had chemo and radiation together, it definitely is what was recommended. The radiation was the hardest. So, ya get a lil' chemo on the side for an extra punch, plus they can easily add that extra site to get the rads. Simplify. Keep it simple.....
Thinkin' bout ya.
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
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