#48357     06-20-2007 07:14 PM      |       Joined:  Jan 2007  Posts: 735    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Jan 2007  Posts: 735  |    Dear Karen
   I have been thinking about you . PLease know that you are in my thoughts and prayers as well as your Dad. You are an amazing woman and your dad must be proud to have raised such a wonderful daughter, I am sending you (((HUGS))) from across the country !
  Shar        
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery 
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#48358     06-21-2007 01:48 AM      |       Joined:  Feb 2007  Posts: 168    Gold Member (100+ posts)   |           Gold Member (100+ posts)    Joined:  Feb 2007  Posts: 168  |    Karen you are in my thoughts and prayers. I am praying for your father to have a peaceful journey as well. Lee        
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed.  Good Health and Good Help to you. Lee
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#48359     06-21-2007 04:54 AM      |       Joined:  Feb 2007  Posts: 176    Senior Member (100+ posts)   |           Senior Member (100+ posts)    Joined:  Feb 2007  Posts: 176  |    Karen,
  I have been following your family's journey.  It was with tears in my eyes that I read this post.  Your Dad knows how much you care for him, and that you both put up a fierce battle.  You did all that you could.  We all share in your pain.
  All the best, Rob        
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
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#48360     06-21-2007 09:19 AM      |       Joined:  Feb 2007  Posts: 1,940    "OCF across the pond" Patient Advocate (1000+ posts)   |           "OCF across the pond" Patient Advocate (1000+ posts)    Joined:  Feb 2007  Posts: 1,940  |    I lost my Dad when he was 51 and i was 25.Not one day goes by when i dont think of him and miss him,but i promise the raw edges do soften with time
  God Bless
  Liz        
Liz in the UK
  Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
  Never take your eye off the ball, it may just smack you in the mouth.
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#48361     06-21-2007 11:18 AM      |       Joined:  Oct 2006  Posts: 12    Member   |           Member    Joined:  Oct 2006  Posts: 12  |    Dear Karen The good Lord gave me 10 years with my Mom from the time of diagnosis until she took her last breath with me holding her hand.  Please take comfort that your Dad will definately be in a better place.  Two days afer Mom passed, a white butterfly came from out of no where and landed gently on my arm. This continued yearly for quite some time.  I smelled her "presence" for many years.  You need to grieve.  Please be consoled that although our earthly bodies get sick and die, the spirit lives on. You'll get to be with your Dad again someday.......... Am feeling your pain, Sue        
Susan Holsberg ssc r maxilla r partial maxillectomy 9/25 brachytherapy 12/7 28 imrt 12/27 erbitux 12/20 recurrance 5/07 total maxillectomy keeping my fingers crossed
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#48362     06-21-2007 12:02 PM      |       Joined:  Jun 2007  Posts: 510    "Above & Beyond" Member (300+ posts)   |           "Above & Beyond" Member (300+ posts)    Joined:  Jun 2007  Posts: 510  |    Karen:  I wish there were words that I could say to help ease your pain.  Realizing that there none, I will just say that you will be in my prayers.  God bless you and keep you in his perfect care!   Lois   (North Carolina)        
CG to 77 y/o hubby;SCC Alveolar Ridge;  Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;   T2 N2-B M0 Stage IV-A 28 IMRT +  6 Paclitaxel/Carboplatin  Getting stronger every day!
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#48363     06-22-2007 04:22 AM      |       Joined:  Apr 2007  Posts: 794    "Above & Beyond" Member (500+ posts)   |           "Above & Beyond" Member (500+ posts)    Joined:  Apr 2007  Posts: 794  |    Karen,  I just read the post from Susan about the butterfly...gave me chills.  After my brother Paul died, 1/99, that summer a beautiful yellow and ornage butterfly was always present.  It used to fly around Jessie and always tickled her belly-Paul was always tickling Jessie's belly!  It stayed around for a few years.  I had forgotten that till I read Susan's post.  I still feel Paul and my Aunt Lauren's presence all the time.  It's comforting. Hope you're doing well.        
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11. 
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