#48033 05-18-2007 02:36 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Rob is 5 weeks post Tx and we are still waiting for the magic day,though i must admit the last three days do seem to be seeing a change and he is definately not sleeping so much.Now he seems to be niggled with minor aches and pains (ear,jaw stiffness,shoulder pain )but he is a lot brighter.Hope your magic day comes soon.
Lizin the UK
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#48034 05-18-2007 02:36 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Gary when is the magic day when the bear with a sore bum bit goes?
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#48035 05-18-2007 03:07 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | LadyJ,
Just like everything else associated with medical Txs, everyone can react differently to the same meds or surgery or chemo or rad, etc. There are soooo many variables to come into play that can and will affect how each of us reacts. I was totally heathly and physically fit before my Dx. I also did not have to have any pre Tx surgery, so if anyone should have had it easier during this Tx it should have been me. I came out of that nasty tunnel in my 3rd week post and many of us on this site did so around that time as well, BUT if your H doesn't don't take that as a sign that something is wrong with him. In fact very few people have ever said they started to feel better BEFORE the 3rd week. So the 3rd week is usually the earliest time to see positive signs.
Good luck and lets hope the beast loosens it's grip soon. I just remember one day I was still feeling like S..T and the next morning I woke up and said WOW I feel a little better. It wasn't dramatic but I it was better and I just knew that it was the beginning of the recovery. As Gary says, it's slow but over time he will get progressively better.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#48036 05-18-2007 06:24 AM | Joined: Nov 2006 Posts: 167 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2006 Posts: 167 Likes: 1 | Lady J, I myself am 2 weeks finished with rads and feel no big improvement. My throat is still very sore and is a killer when I sneeze. I look so foward to the day I feel I am heading back to some sense of nomalacy. I have found the soft foods that allow me to swallow easier. Good luck and God bless.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
#48037 05-20-2007 02:48 AM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | OP Senior Member (75+ posts) Joined: Feb 2007 Posts: 76 | Lady J
Marvin will be starting into his 5th week post tx also, we still havent seen that magic turn a round yet. Matter of fact he seems to be getting a little more depressed. I did up his anti dep meds this week per the doctor. He still doesnt eat anything by mouth and if I am lucky I can get 2oz of water down by mouth though the day. I worked an extra job this week which left him home alone more and that may have added to the depression so I am going bact to only 5 hr per week until he seems better. We also just had our first grandson May 11, and Marvin has been to tried to really enjoy him I think he also feels down about that. We go to see the doctors this tuesday for a check up I am hoping they will encourage him to eat more by mouth and suggest anything esle to help him get more energy back. We did have a few days a couple weeks ago that he did have a little more energy he took a walk on day and was vacuming the next. He did go with to hospital on May 11 that may have draind him alot. He had to stay there the whole day until 11pm to see the new little one. So I figured maybe this past week was a catch up from being wore out.
Barb CG for Marvin.
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#48038 05-20-2007 04:02 AM | Joined: Mar 2007 Posts: 13 Member | Member Joined: Mar 2007 Posts: 13 | Wow! My husband has 8 tx's left and I didn't realize he would still be experiencing pain and difficulties for so long afterwards. I thought the healing would begin right away.
Melissa CG to husband (billy.calcutt) (44), BOT SCC Stage IV, node involvement Dx 3/7/07. Cisplatin x 3/RAD x 30 TX over on 5/31/07!
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#48039 05-20-2007 02:17 PM | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2006 Posts: 294 | Melissa,
The radiation that is administered continues doing it's thing for a few weeks following the actual "final dose". I seem to recall being told something like 3 to 4 weeks. This is why you should not expect any magic and sudden changes immediately following that last round of radiation.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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#48040 05-20-2007 04:11 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | Melissa; Bill D. is absolutely correct with the 3 to 4 weeks post TX effects. Radiation is "the gift that keeps on giving" and it will take some time. Continue to keep Billy swallowing no matter how it feels and keep plenty of fluids passing through, even if it's just swishing and spitting. The more proactive he is the easier it will get.
Best wishes, Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#48041 05-20-2007 04:55 PM | Joined: Apr 2007 Posts: 42 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Apr 2007 Posts: 42 | Congratulations on the completion of the treatments. My turn to get the treatments next. YIKES!!!
Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
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#48042 05-21-2007 01:39 PM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Mar 2007 Posts: 179 | ok, guys, you convinced me not to look for the magic number, but I think my husband is hoping for it. He has started to eat a few tablespoons of food and he says his mouth doesn't taste so much like metal mouth.Thank God for the peg tube! He still has to decide on 3 more rounds of chemo on a pump. They are telling him patients that have this extra boost seem to have an advantage of the C not recurring so ... also I noticed on Talbill what is 5fu pump? Thanks, Lady J
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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