#47730 03-02-2007 05:39 AM | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Hi everyone-
I finished radiation a little over two weeks ago. I'm feeling alot better now, still have a sore throat and the roof of my mouth is sore and so is my tongue(although I thought I didn't get radiation on the front of my tongue).
Anyway, I've tried the biotene mouthwash but it stings my mouth. Is that probably related to the residual mouth sores, or is the stinging part of the dry mouth?
Thanks
Mel
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
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#47731 03-02-2007 06:04 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Mel,
It's probably due to the fact that you're still only 2 weeks from the end of radiation. When I was at that stage, EVERYTHING stung my mouth -- even plain water. The lining of your mouth can take months to heal, and you have to keep watching out for thrush, which can add to the pain and burning sensation.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#47732 03-02-2007 11:55 AM | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Thanks Cathy-
Actually, water and other food and drinks still hurt, I use topical stuff for drinking. I thought that since the actual sores were gone that my mouth was better. But the roof of my mouth and my tongue are burning and I was worried that was a dry mouth side affect.
Mel
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
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#47733 03-02-2007 03:23 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Mel, my husband found that an OTC product named RinsiNol helped his mouth sores alot. Also, he liked Lidocaine 2% viscous [by prescription] for mouth sores.Also ask your Doc about the "magic mouthwash" that many Docs use [each one seems to be a little different] Keep track of everything you try, what it feels like and if it helped or not and how long you used it. Sometimes it won't work at 1st and then later it will. Frustrating, but good info for you to have.Remember, where there is a will, there is a way. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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