#47560 01-21-2007 11:42 AM | Joined: Dec 2006 Posts: 12 Member | OP  Member
Joined: Dec 2006 Posts: 12 | If you're in the Houston area, I have just had my peg tube removed & no longer need the left over feeding bags and cases of Carnation VHC. As Linda West from this site helped me when I was having trouble getting supplies, we did notice that there are a lot of people on here that don't have insurance or financial aid...to you, these supplies are free for the asking!
Pay It Forward, Jim
Age 51, Squamous Cell Carcinoma, lymph node on left tonsil, 6 wks chemo - 7 wks radiation, treatments ended 12/1/06 (hopefully)....
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#47561 01-21-2007 03:46 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Jim;
Glad to hear that the tube's gone. That is great news!! Can't wait for mine to go (hopefully in the next few weeks here)
Best wishes on your follow ups, keep us posted.
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#47562 01-21-2007 05:10 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Jim, Im so glad to hear the tube is gone! I hope you are feeling well, havent heard from you in awhile. I ask about you all the time, when i go in for PT in the Woodlands. Have you got to ride the bike yet? We are still waiting on "warmer" weather!!! Well it was good to see your post, let us know how you are doing and feeling! Congrats again, on the removal of the tube..."your eating" thats great and how is the water going, still have to drink all the time?  | | |
#47563 01-22-2007 05:22 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | HD,
I am a little past 4 months post Tx and I still drink the VHC to supplement my daily calories. I wouldn't be so quick to throw that stuff away.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#47564 01-23-2007 05:05 AM | Joined: Dec 2006 Posts: 12 Member | | OP Member
Joined: Dec 2006 Posts: 12 | Thanks everyone! I've never been a big milk or vanilla fan, so drinking the vhc wouldn't work for me....wish they made it in chocolate (or maybe chinese buffet flavored...lol). Haven't had a lot of response to this ad yet, & it was removed from the After Treatment section....anyone know where I might go to donate this stuff to someone that needs it?
Age 51, Squamous Cell Carcinoma, lymph node on left tonsil, 6 wks chemo - 7 wks radiation, treatments ended 12/1/06 (hopefully)....
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#47565 01-23-2007 05:32 AM | Joined: Sep 2006 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2006 Posts: 42 | We gave our left over supplements back to our dietician at the hospital. When we first started, she gave us a case. She passes them on to new patients or patients who have been hospitalized and have run out.
----------------
Caregiver/husband; SCC left tonsil-3 lymph nodes;35XIMRT;35Xcisplatin/tarceva 08/06;neck dissection 11/06.
MARTY-Caregiver to husband (non-smoker/non-drinker)Dx 04/06 SCC Stage IV left tonsil-3 lymph nodes,HPV+,Tx 35xIMRT,35xcisplatin/tarceva,neck dissection 11/06, beginning HPV vaccine JHopkins 04/07.
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#47566 01-23-2007 06:17 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | If there is a hospice near you, you might consider donating your supplies there. Many hospice patients end up on a G tube or having to have a liquid diet and often it is not covered by insurance.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#47567 01-23-2007 07:07 AM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | I know of two or three hospices in Houston and my friend's wife runs one of them. Email me and I will get you in touch with her if you want.
I remember giving away boxes of feeding tubes that I no longer needed to a friend of mine whose daughter had gone into a coma and could use them.
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#47568 01-23-2007 04:27 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Harleydude;
My chemo nurses always keep samples on hand and I asked them if they would be interested in my "leftovers" (all sealed and everything of course) and they said sure. (I can't handle the stuff either so someone else can get some good out of it) If Danny G.'s suggestion doesn't work out this might be an option for you.
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#47569 01-23-2007 05:59 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Harleydude,After the 1st peg was removed, we gave the extra cases back to John's surgeon to distribute to patients without insurance. Also, nursing homes in many areas will take them. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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