#47418 11-15-2006 03:43 AM | Joined: Sep 2006 Posts: 51 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Sep 2006 Posts: 51 | Hello all,
Penny has had 8 chemo treatments and as I posted earlier she developed febrile neutropenia and was hospitalized for 5 days and missed 4 IMRT's. Her MO has stated he would like to cease her chemo as he feels to continue it may compromise her regimen of radiation. I've read several post where chemo was stopped, but I guess my question is originally he wanted to have the chemo run the whole course of her IMRT and even 2 weeks post IMRT--now he is saying that it would be okay to stop the chemo and her tissues are "softened" enough to enhance the radiation. So initially 16 weeks of chemo were warranted and now 8 is sufficient? I know it is more important to continue the radiation, yet it seems having 1/2 the chemo stopped would compromise the outcome? The Dr's respone to this is the IMRT is more important but still this doesn't seem like the main question is being addressed? She has I think 17 more IMRT's to go. Any comments?
Sarah
Sister is Stage 4 DIAG 9/06 Tongue/Tonsil /T4N1MO - BOT -right lateral/crossed midline-42 X IMRTS/ Carbo/Taxol for 7 weeks- finished treatment early 12/06-no trace to be found 1/24/07 Recurrence 12/09- rad neck and partial gloss 2/10
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#47419 11-15-2006 07:58 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | I think the doctor is right that to keep up with the IMRT without more delay is most important. It's the radiation that does the real heavy work in terms of killing off those cancer cells.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#47420 11-15-2006 09:14 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | It is my understanding that radiation, for initial instances, not recurrences, is the primary treatment regimen. Chemotherapy, as insurance, is additional. If the doctor recommends that chemo be discontinued, be guided by his/her advice. Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#47421 11-15-2006 01:11 PM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2006 Posts: 160 | My MO told me at the begining that he would like me to have chemo every week I had a week of radiation, but he also said in reality most people's bodies can't take all the chemo. I went 5 rounds, and he stopped. I was so weak, and my mouth had so many blisters, and I got the yeast infection, I didn't get the 6th treatment. He said it wasn't worth risking my health. I even took 4 days off radiation, then went back to finish the radiation. I wanted so bad to do everything I could to get rid of this, but I also realized I didn't want the treatment to do more harm. Hope this helps.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#47422 11-15-2006 03:08 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Sarah, that's not uncommon when her counts are so compromised. To continue could do more harm than good and it's important to finish the radiation. I remember the MO told us that Jack needed to get at least 2 chemo treatments, and if he could tolerate the remaining 2 that would be ideal but that it was not always possible. I got the impression that getting the first 2 of the chemo was the boost they wanted to boost the radiaiton. His counts came back up when he was hospitalized but that's the only reason they were able to continue. What they're saying does make sense. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#47423 11-15-2006 04:11 PM | Joined: Sep 2006 Posts: 51 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Sep 2006 Posts: 51 | Thank you- yeah I guess in the long run it does make sense. Perhaps they just wanted to see how aggressive they could be with this and give her the most she could tolerate- so I guess overall 8 is pretty good...it's just you all know how I feel - frustrated and concerned- - thank you for the input.
Sarah
Sister is Stage 4 DIAG 9/06 Tongue/Tonsil /T4N1MO - BOT -right lateral/crossed midline-42 X IMRTS/ Carbo/Taxol for 7 weeks- finished treatment early 12/06-no trace to be found 1/24/07 Recurrence 12/09- rad neck and partial gloss 2/10
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#47424 11-16-2006 10:46 AM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Hi Sarah, Yep frustrated and concerned sums it up pretty well. You're doing good by your sister and I hope next week goes better for her. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#47425 11-17-2006 10:03 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Sarah, I was supposed to have 3 Ciplatin treatments, every 3 weeks, and they cut the last one because I responded "too well" to the treatment. Like Nelie said, the radiation is the primary frontline treatment - that has to be completed. What was her protocol? What was she taking?
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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