#4711 01-07-2005 12:02 PM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | just passing through when i found this org. find it very informative , decided to join u all and become a member.  :rolleyes: | | | 
#4712 01-07-2005 04:14 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Welcome Maz344, sorry you had to join us but hope we can help. Take care, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#4713 01-07-2005 05:09 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey maz334,
Welcome to the site! Are you here because you have oral cancer? It's a great site with so much information and some very courageous and caring survivors and caregivers!
God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#4714 01-07-2005 06:08 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Welcome to our little corner of the world maz334!! Have you completed treatment for your cancer or in the process? What type of treatment have you received? You found the most informative website on Oral Cancer on the web. Please let us know how your doing. You are not alone in your battle any more!
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#4715 01-08-2005 01:54 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hi,danny i was diagnosed laryngeal cancer jan 2004 had 20 sessions of radical radio therepy it done the job tumour had gone .after check up dec 20 a swelling has appeared again same place same symtoms etc waiting to have biopsy wed 12 jan ?? | | |
#4716 01-08-2005 01:59 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | thanks for the welcome ,look like being around a while reading between the lines re specialist talkin
regards maz | | |
#4717 01-08-2005 11:29 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Welcome maz
You will find wonderful support and info here. Please let us know about your biopsy. Sounds like you had a tough year in 2004.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#4718 01-09-2005 08:39 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | thanks for the kind words helen.iam just finding my way around,everyone is so caring iam glad i found this site it is very informative without being frightening ,after all we are all in the same boat more or less.willkeep u informed
regards maz | | |
#4719 01-11-2005 08:15 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Maz,
Welcome to the neighborhood. I am sure hoping your biopsy results show no more cancer.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#4720 01-11-2005 02:33 PM | Joined: Jun 2004 Posts: 106 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 106 | Hi Maz,
I hope your swelling is a false alert. Let us know what they say.
Leena
scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04
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