#47041 07-30-2006 03:52 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | That's a lot more pain than I had two weeks after. It was very painful for the firts 4-5 days but after that it got better pretty rapidly.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#47042 07-30-2006 07:02 AM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2006 Posts: 82 | I have an appointment on Wednesday for them to look at it including inserting some dye and x-raying me to see if it working properly.
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO 35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
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#47043 07-30-2006 11:41 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | If it is standard clear vinyl tubing you should be able to get clamps to shut it off Try http://www.tapplastics.com/shop/product.php?pid=146
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#47044 07-31-2006 04:46 AM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2006 Posts: 82 | Mine has a clamp. The problem is that 3 hours after I have poured 1 can of Boost in the tube, I go to unclamp it and about 1/4 of the prior can runs out. It doesn't seem that it should take that long for me to digest one can of Boost-should it?
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO 35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
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#47045 07-31-2006 11:42 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | I am somewhat of a professional in respect tp Peg tubes, since I have had one since initial treatments and will have one for the remainder of days here on this planet. I am one of those unlucky individuals with a radiation damaged epiglotis, I cannot even take a sip of water by mouth due to aspiration. I now have a foley type G-tube that cannot be clamped off like a PEG. I have a lopez valve on top to keep the contents of my stomach from spilling. I stiil have accidents due to my ignorance and they are messy. Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#47046 07-31-2006 03:36 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Gee, Sarah, like I posted earlier, John always has a little residual in his tube, but if 1\4th of a can of Boost came back up, we would be worried too. Hope someone can fix this for you.  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#47047 08-01-2006 10:02 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | If I remember correctly, if I took the clamp off mine without connecting the tube to the syringe everthing would pour out (only did it a few times made such a mess) Is this what is happening to you? If so just remember to keep the clamp on till you are connected up! Hope this helps Sunshine.. love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#47048 08-10-2006 06:12 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Fellow peggers - Nothing should spill from your peg when you open it. If the peg is properly installed and is operating properly, nothing should come pouring out. Are you eating in a reclined postition? You should be. Lean back, elevate your feet, relax your abdomen before you open the tube.
If you are standing, or sitting vertical, the inside end of your tube is "under water" (or worse). Peggers don't eat vertically at the table, peggers eat reclined in the Lazy Boy.
For the visual among us: Take a large zip lock bag and color a big, quarter-sized dot in the middle of the bag. Fill the bag half full of water. Blow it full of air and zip it shut. Thats your stomach and the dot is your peg. You gotta LEAN that bag back till the dot is at the top of the air pocket.
To complete this physics lesson, cut out the dot, and carefully lift the bag with both hands. Now, simulate a sneeze (viscously grip the bag with both hands and squeeze hard). I have compelted this maneuver with my peg - while pouring in strawberry ensure. The sneeze brought forth a lovely pink geyser that took nearly two hours to clean up. The moral..... opened peg tubes should belch, not pee. Be strong, Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#47049 08-10-2006 06:28 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | I may have to respectfully disagree with you on this one Tom. I had a PEG for 9 months and never had an ounce of trouble with it, so it was obviously installed properly. If I was sitting in a chair or standing and I opened the end, the amount and time I had "eaten" last would determine if anything came out. If I were lying flat, usually nothing would come out even if I had just eaten. I never reclined to use the tube, I did it wherever I was at the time. In the car, cooking dinner in the kitchen, on the computer, etc. I plugged in the syringe, poured the food in the syringe and waited for it to go in. It got so I could put a can in my tube in under 5 minutes. I'm not suggesting this style to anyone, I hate to sit still so do most things on the go. But, I don't want everyone whose tube may leak to worry or wonder if it's installed properly. Take care, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#47050 08-10-2006 07:09 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | I will vote with Minnie on this. I found it was more comfortable to sit upright to feed. I had mine for 6 months and never had any trouble at all. I hung the gravity feed pouches on an IV stand, which I then set on a table while I sat on the floor to get it to go in faster. I could do it in about 5 minutes also. Which proves once again that everyone's treatment reactions, and PEG installations, are different. | | |
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