#46369 10-03-2005 05:18 PM | Joined: Aug 2005 Posts: 17 Member | OP  Member
Joined: Aug 2005 Posts: 17 | Hi guys. Just reporting in and saying a cheery hello to all. Surgery 12th September. Removal of half my tongue, neck disection. Got a flap in, talking really well and almost on to solid foods. Docs and family are surprised at my healing and even now the scars on my neck are hard to see. I really only have discomfort in my wrist from the graft. Have been off pain killers four days now. I guess I am extremely lucky to have healed so well and perhaps a little relieved that I got this awful disease so young! I am gearing up for radiation in four weeks time. I am so happy to be able to spend this healing time with family without feeling too dreadful. Finally - just to pass on my heart felt thanks for all your wonderful words on this site. What a comfort it was before treatment and I am sure will be even more comfort during radiation. Thanks guys and hope you are all well. Love and good wishes. Karyn
SCC left tongue Stage 2. 34 years old. Free flap and neck dissection 12/09/05
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#46370 10-04-2005 05:54 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Good news Karyn, glad to hear you are doing so well. Will keep you in my prayers..Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#46371 10-04-2005 08:44 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Wow
You sound great and great to hear how easy of recovery you are having for this major procedure. I'm sure that will give comfort to others who may have to travel your path.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#46372 10-04-2005 10:43 AM | Joined: Apr 2004 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2004 Posts: 50 | Keep up the good spirits Karyn, you are doing great. Good news like yours helps us all feel better.
John | | |
#46373 10-04-2005 12:30 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Congratulations Karyn, you are doing well and your positive attitude has helped you I'm sure. Wishing you well for radiation. Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#46374 10-04-2005 01:30 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Karyn, I'm glad you are doing so well. With that attitude, maybe you'll sail through radiation as well. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#46375 10-06-2005 08:21 PM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Karyn. That's GREAT! Have a happy time with the rest of your brand new life. The world takes on a special sparkle at times like this doesn't it?
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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