 
#45992 09-20-2005 03:39 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) |  "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Did you say four treatments left, Michael?
After all you've been through recently you haven't lost your sense of humour. Well done. When do you estimate going to back to your real home?
Love and light to you and Seth from Helen
RHTonsil SCC Stage IV tx completed May 03
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#45993 09-20-2005 04:05 PM | Joined: Sep 2005 Posts: 18 Member | | Member
Joined: Sep 2005 Posts: 18 | Hi Michael,
I'm glad to hear that you're feeling better and home. My dad was just admitted in the hospital with 4 more days of radiation to go (7 more treatments) He also has a fever that keeps going up and down. Did the doctors find out what was causing your fever? They don't know why my dad keeps getting a fever. All tests came back good. Best of luck to you and you'll be in my thoughts.
Tracy | | |
#45994 09-20-2005 04:15 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Michael, after you get back to Calif., would you consider loaning Seth out? You both are getting through this in a way that should make you proud of each other. This is such a difficult journey. Keep on keeping on  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#45995 09-21-2005 12:57 AM | Joined: Jul 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2005 Posts: 54 | Michael and Seth,
Things sound so much better for you. I don't know how you got ahead of us - John still has 5 more and we started a week ahead of you - he missed two which delayed us and I guess he was scheduled for more than you to begin with. We too have a little pharmacy going here for all the symptoms. It's amazing - as soon as we're on a schedule another symptom comes up and we're dropping one med and adding another. Whatever gets him through this, it's worth it. I wish John would come on this site and read all these notes. He's too afraid and just focuses on getting through each day. He doesn't want to know what may occur because what is happening is enough for him to handle! Hope your last few days go smoothly (you too Gail and Barry). I hope you return to California ASAP - there's no place like home.
Peace and all good things,
Janet
Caregiver, Husband diagnosed 7/6/05 SCC left tonsil, T2N2bM0, Concurrent chemo/radiation begun 8/2/05 (Cisplatin). Received 2 cycles cisplatin, 38 radiation treatments. Completed course 9/27/05.
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#45996 09-21-2005 06:30 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Michael and Seth,
I've been off the board for a few days. Glad you are out of the hospital and feeling better. I can't believe how sick they have made you, but then I never had any chemo. By now you should be down to the LAST 3 and seeing the 'light at the end of the tunnel'. The first morning that you don't have to go to the hospital for treatment is cause enough to celebrate. If you have the energy, you and Seth should take Zach for walk in the park to celebrate. The three of you deserve it.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#45997 09-21-2005 10:23 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Way to Go guys!
Is it not the best feeling to know you are just about THERE. Imagine how good you will feel when it`s finally over!
Blessings all over the place!!
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#45998 09-23-2005 06:14 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | So Michael, now you must have ONE treatment left!!! I just got caught up here. BIG congratulations and I'm SO glad you are feeling a little better for the last treatments. Seth, you deserve a HUGE hug for being such a champion caretaker!
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#45999 09-24-2005 07:53 AM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | ONE TREATMENT LEFT!!!!!!!!!
Scheduled for Tues due to machine maintenence.
SO, I'm using my 3 day holiday to try to recoup even more.
I can't believe just one left!
I'm miserable, but motivated by the fact that I am virtually done.
Major pain (6 to 8) (mouth sores, sore throat, skin burns) barely managed by Oxicodene (5ml every 6 hours), fevers on and off, huge phelgm issues (including vomitting nearly 2x every day), still major ear ringing (6+) and nausea occasionally.
But, other than these things I'm ok. And, I'm keeping enough fluids and nutrition down for now.
One more treatment!!!!Thank you for everyone helping me get to this point.
- Michael
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#46000 09-24-2005 12:47 PM | Joined: Jul 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jul 2005 Posts: 54 | Michael,
You are a champion sharing your journey with us. One treatment left for you! You and John will end on the same day (he has 2 left). He shares most of your symptoms so I guess misery really does like company! I can't tell you how much you've helped me through this by being so open in this very private time in your life. We caregivers rely so much on you patients letting us know what is going on and how we can help, if we can help. One minute you feel like a nag and the next you feel negligent! Humbling all the way around, this process/these treatments. John is always grateful though as I see you are too.
Peace always,
Janet
Caregiver, Husband diagnosed 7/6/05 SCC left tonsil, T2N2bM0, Concurrent chemo/radiation begun 8/2/05 (Cisplatin). Received 2 cycles cisplatin, 38 radiation treatments. Completed course 9/27/05.
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#46001 09-26-2005 08:47 AM | Joined: Jul 2005 Posts: 150 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jul 2005 Posts: 150 |
Dad Treated for T2N1M0 Tonsil Cancer August 2005. 35 IMRT radiation, 3 doses Cisplatin. Selective Modified Neck Dissection November.
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