#45215 07-16-2005 06:44 AM | Joined: May 2005 Posts: 8 Member | OP Member Joined: May 2005 Posts: 8 | My husband has been on Oyxcontin 20 mg twice a day for 2 months during his treatments. He has had no real breakthrough pain and has done really well on this. He has 1 more Chemo and 8 more radiation treatments to complete. Last week was the rough one as he had radiation burns and extreme fatigue. His burns have healed and he is feeling much better now. I know the weeks after radiation is done will be rough but I was wondering how to taper his pain meds so he can get off. I know a lot of you have experience with this. | | |
#45216 07-16-2005 07:33 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Sep 2003 Posts: 1,244 | hi maybe oyxcontin 10mg twice daily with oxynorm as a standby for breakthough pain, hope this gives you some help Sunshine... love and hugs Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#45217 07-16-2005 11:56 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | First of all, I would wait until he is actually in less pain. I am six weeks out from rad. and the mouth pain I have is still pretty bad. I am on oxydose a liquid form of oxycontin that you have to take every 3 hours). Although remembering to take it (and needing to wake up in the middle of sleep at night to take it before I get in serious pain) is kind of a hassle, what I like is I can go from none at all during the day (if I am drinking enough liquid to keep my mouth moist and not doing anything like teethbrusing that irritates my sore spots I can go a couple of hours after 3 hours is up sometimes without needing a new dose) to taking more at night when I tend to have breakthrough pain, as well as more sever drymouth whivh agravates the sore spots. In general I take 5 mg doses during the day and 10 mg doses when I'm sleeping. My doc said I can go up to 15 if I need it for pain at night and I seem to need it MORE lately, thbough I think this is just ebcause my body has adjusted to the oxy and so i need more to get the same effect now.
I haven't really noticed any withdrawal symptoms on days when I go up or down in amount so far. Anyway, my original point was meant to be that although I can see some of the sores in my mouth healing, I still have a couple of painful spots, espcially at night, and I don't think I'm ready to go off it entirely yet. So it may be you shouldn't yet worry about the tapering off. The worst mouuth pain I had was about 1-3 weeks after rad.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#45218 07-16-2005 07:59 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | What do mean taper - are you nuts? The worst is yet to come. Come back and ask us in 2 months AFTER he's completed treatment. Besides tapering is medical advice and we do not offer that here (sorry Helen). It MUST be planned out by a doctor to avoid convulsions, seizures and other potentially dangerous complications.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#45219 07-16-2005 09:21 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Feb 2004 Posts: 261 | I have to agree with Gary & Nellie that things are just gettin' fun & now is definitely not the time to be slimming down on pain meds! Maybe only take as needed, but not taper off. I do remember being sick of the opiates & all their side effects though! Patience! He's got a ways to go yet! Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#45220 07-17-2005 12:23 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2003 Posts: 235 | I would agree with doing this under medical guidance. My ma had, and still has, a habit of changing the dosages of her meds on her own. I can't tell you how many times I have been to the ER over the past two years. Be very careful.
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
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