#45111 07-05-2005 01:18 PM | Joined: Apr 2005 Posts: 50 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 50 | Dear Danny,
Your news was so sad for me to hear. You have been so good and kind when I have written emails asking questions for my husband Doug. I will be sure to include you in my prayers and I know that you will beat this!!! You have such a great attitude.
Love to you
Virginia
Virginia
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#45112 07-05-2005 02:28 PM | Joined: Mar 2003 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 64 | Hey Danny Your recurrence is the pits. Maybe there is something in the Wisconsin air that is slowing down the progress of the chemo drugs. Jack is sure the carboplatin and taxol aren't working for him either. He's trying to talk the oncologist into a scan before the series is finished. He feels a bigger mass in his neck after 2 months of treatment when it should be smaller. It's encouraging that there is another set of drugs to try. Our hope is that the FDA will approve Erbitux for head and neck cancer before it is too late for him. The reading we have done makes it sound the most promising. Right now he would have to find a trial that would take him in order to get it. I wonder if he would be strong enough to travel any distance for the treatment. Keep hanging in there. You have kept up the spirits of so many. Know that we're all thinking of you and praying. Lowanne | | |
#45113 07-05-2005 03:20 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Danny,
Wow...there is no justice when it comes to this horrible disease. You, of all people, know this.
Since joining this wonderful "club" I have been amazed with your wonderful and caring advice. I pray that you will again beat the odds and will continue to share your expertise with the members of the OCF for many years to come.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#45114 07-05-2005 03:48 PM | Joined: Apr 2005 Posts: 44 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2005 Posts: 44 | Danny Boy:
It's odd how we come to feel so close to folks in here who we haven't met in person. There's a spirit which connnects us and I have seen it so many times in your informative, thoughtful, encouraging and loving posts. You have been such a source of inspiration and strength. Now it's your turn to draw that from the rest of us. May you find the strength to live each day with a bit of joy and the courage to find peace in the midst of battle. Dad and I celebrated his last IMRT treatment with 9 holes today. He's tired and sore, but he wanted to go on. Reminds me of you. Ciao, Tina
Daughter of 75-yr-old Dad with tongue cancer (T3NOMO) surgery and rt neck dissec 4/27/05; completed 27 X IMRT on 7/01/05; recurrance w/ surgical removal of another SCC tumor on 10/7 (he's also nonHodgkins lymphoma survivor since 1/94)
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#45115 07-05-2005 03:48 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Danny, I'm so sorry to hear that was the news you got. You're in my warmest and most loving thoughts and prayers.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#45116 07-05-2005 03:54 PM | Joined: Jul 2005 Posts: 1 Member | | Member
Joined: Jul 2005 Posts: 1 | Man oh man>>> Im here with a recurrence after 14 years...
keep kicking every day is a new one! My prayers are with you.
Tim | | |
#45117 07-05-2005 04:02 PM | Joined: Apr 2005 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2005 Posts: 58 | Danny I am so sorry to hear this news. I am sure though, with a bit of time, you will again be showing your unbelievable spirit and this too shall succumb to its power.
Tim
SCC Right Tonsil, T2N1M0, Dx 12/04, Tx 40 radiation (180 rad), 8 Chemo (carbo), Tx ended 3/15/05, Selective neck dissection 5/24/05, 22 nodes, 4 levels, no evidence of metastatic malignancy!!! :-)
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#45118 07-05-2005 10:28 PM | Joined: Apr 2004 Posts: 146 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2004 Posts: 146 | Danny,
Oh how I wish I had the right words to say or the magic to rid everyone of this horrendous, unforgiving beast but unfortunately I don't. I can't tell you how sorry I am to read your news. It just doesn't seem fair that such bad things happen to such great people. BUT, with your fighting, positive attitude (you're one tough dude!) and the loving support of family and us here on the forum, you'll get through this once again. Try to keep your spirits up and keep fighting! We're here for you, Danny.
Many hugs, Nancy
Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
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#45119 07-06-2005 01:49 AM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | I can't begin to tell you how sorry I am to hear this news. We are truly a family and you are a dear brother. Thank you for all the support in the past and we will be here to help you fight in any way we can.
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
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#45120 07-06-2005 08:14 AM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Danny, When u feel up to it i hope u will post more on here. I am just curous as to why they cant do any surgery? And i know one can only have so much radiation. But do u have faith in your doctors. I am sorry i just want to make sure you have looked at all your options. Which i am sure u have. Please stay strong and fight.
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
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