#43298 05-04-2004 03:36 AM | Joined: Feb 2004 Posts: 43 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Feb 2004 Posts: 43 | Hi Everyone!!! I'm on week 5. So far Ok...I'm going through my 2nd case of Thrush and back on the Nystatin swish and swallow. The Trush seems to make my saliva very foamy, sometimes I'm even foaming at the mouth.and makes my tongue stiff. I'm basically on Boost and water. and just 9 days go!!!Yeah,Take me to the River!!! Any ideas about the Trush, should I boil the toothbrush, should I really try hold the Nystatin in my mouth for as long as possible??? Try and wipe off the tongue as much as can be? Thanks Tom Roussell
SCC Tonsil Rt T3 N2b M0 side DX Jan 04 Tx 36 Rad 3 cisplatin Tx ending May 04. partial neck dissection july 04..... July 15,08 mets to liver Age 57...Did Methotrexate Sept 08. Now on a trial drug Panitumumab, Feb4,09 treatments stopped. going to Tibetan Medicine.
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#43299 05-04-2004 07:32 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tom,
Glad to hear you only have 9 days to go! I'm probably the worst to ask about thrush, though, because I have fought it for about 7 months or so. I guess you could tray everything except what I did and see if it helps.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#43300 05-04-2004 03:21 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Tom, This country (Australia) ran out of Nilstat a couple of weeks into my radio treatment, so I was recommended Daktarin, which seemed more effective. You coat it all over your mouth and tongue, leave it in for as long as possible, then swallow it. Another one they gave me was Fungulin (Rx), but it takes ages to suck on the large tablets, and then the embarrassing part comes when the yellow paste is stuck on your lips! I looked like Al Jolsen (except I'm white)!  I still have some thrush, but I admit I'm slack on doing things all the time. Especially when you're working throughout the whole thing (went back to work part-time a week out of surgery!). Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
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