#43291 05-08-2004 02:44 PM | Joined: Sep 2002 Posts: 642 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Sep 2002 Posts: 642 | Lynn,
Your attitude sounds wonderful. I have not yet tried eating sushi wrapped with the rice and seaweed, but a couple of the first things that ate once I could swallow again were plain miso soup and yellow tail sushimi at the sushi bar. My brother the health nut reminded me that many people in Japan, suffering radiation burns from the atomic bombs, healed better than expected due to eating miso soup. Gosh, I never seem to eat it anymore. Oh well....
I am glad that you sound so good and congrats on your daughter's birthday. I drove to Austin, Texas today to begin moving my daughter home from the University of Texas where she is a freshman. I hope that the milestones keep on coming for you.
Take care,
Danny G.
Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
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#43292 05-08-2004 03:15 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Lynn,
I also wanted to wish you many more birthdays with your daughter. My youngest daughter, Sam, is 10 and I hope to be here for many more of her birthdays. You and your family are in my prayers.
Danny, we have daughters the same age...............aren't they wonderful?
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#43293 05-08-2004 04:14 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny G,
Funny, I just got back from stuffing the sushi down for the past 2 hours. The first food I ate was sushi and with a little extra tea or water, it goes down just great! I went to Japan in March and I stuffed myself many times a day. When we landed there it was like my throat started working again and everything tasted great. I even ate a traditional Japanese breakfast and a western breakfast one right after the other at the hotel every morning. Actually, probably 80% of my diet is Japanese, probably got it from my Japanese mother. She saw both bombs from about 80 miles away as a child and used to talk about it a lot and how hard it was to find vegetables for many months. She had cancer first around 18 and died from ovarian cancer. I think there is some connection to the bomb.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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