#43183 04-21-2004 04:20 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Just a note to say we went to see the oncology team for the results of a CT scan, brain and neck MRI and PET scan. AT this point they do not see any cancer lingering. I know how this cancer can show up in mets and micromets, etc., so they will keep a close eye on him. Plus the PVL leukoplakia disease is still lurking...it is unknown at this time what the radiation might have done for that, if anything. We see the oncology team in a month and the PVL specialist.
But for today we are celebrating and praising God for this good report. Thanks to all for your thoughts and prayers. I try to thank God IN everything we go thru, not necessarily FOR everything we go thru.
Take care and God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#43184 04-21-2004 04:28 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | AMEN!!!!!!!!!Wonderful news Deb....God Bless you both...Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#43185 04-21-2004 06:04 AM | Joined: Mar 2004 Posts: 164 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2004 Posts: 164 | Great news. I just sent you a private message asking for an update. PTL. I hope Dan is doing a little better with the good news. I know this recovery is hard.
Lynn
Stage 3, N0, M0 oral tongue cancer survivor, 85-90% of tongue removed, neck disection, left tonsil removed, chemo/radiation treatments, surgery 11/03, raditation ended 1/04, lung mets discovered 4/04,
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#43186 04-21-2004 07:12 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Debbie,
Good to hear a good report about Dan. Hopefully this will help him in feeling better.
Take care,
Dinah | | |
#43187 04-21-2004 07:33 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Debbie
Is always good to get good news.. hope you can now relax a little.. Tell Dan we are all so pleased for you both.....
love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#43188 04-21-2004 10:07 AM | Joined: Oct 2016 Posts: 284 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2016 Posts: 284 | Debbie,
So happy to hear the great news! I'm sure Dan will be starting to feel much better very soon and hopefully he will be able to start eating soon too. You have been so supportive to everybody on the website while you have been going through Dan's difficult treatment. So glad to see that all you've both been through has brought you wonderful news! Now you can get some good peaceful nights of sleep.
Love,
Danielle
Originally joined OCF on 12/12/03 as DaniO or Danijams
Dani-Mom SCC BOT & floor of mouth surgery-recur then surgery/rads & chemo completed 3/04
surgery 11/06 to remove dead bone & replace jaw w/ leg bone & titanium plate
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#43189 04-21-2004 10:21 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Debbie (and Dan, of course),
It is wonderful to hear the great news! I am so happy for both of you and you be sure and relax.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#43190 04-21-2004 04:12 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Debbie and Dan, this good news put the perfect ending on my already pretty awesome day! Congrats.
Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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