#42692 08-08-2003 06:24 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Friends and a special Hi to Father Mike!!
The surgery was diffucult at best. I went in at 6:30am and came out at 8:30pm. I was the lucky one, I was asleep.My poor family had to wait & wonder! They had me so drugged up I was seeing things when I woke up. The tumor was removed from my right tonsil, roof of mouth and a small amount on the base of my tongue. The surgeon said it had poorly defined margins so they cut alot out to be safe. They used my right side chest pech muscle and used it to reconstruct my throat. It is very sore. (Brian)Looks similer to your post op photo in the founders Bio. The good news is they tell me my neck lymph nodes showed no signs of cancer,
After 3 weeks of healing I will have 4-5 weeks of radation. Shed a ton of tears this last week and when I was at my lowest, the posts from this website were like a beacon in that dark room telling me I can overcome this. For that I will be foreever be thankful. I have shed a few tears writing this and have to go sleep now. I could not sleep more than I hour at a time in the hospital, I am truly exhausted. Love Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#42693 08-08-2003 06:53 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Right On Dan! I'm glad to see you are getting through this.
I wept from time to time during radiation treatments (usually something in the music I was playing would grab me) also and it was very liberating.
I hope you saw my post about a guy I met last Saturday who had the same treatment and is a nine year survivor with no recurrance.
Be sure to let the doctors know about your pain though. You should not be suffering.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#42694 08-08-2003 11:46 AM | Joined: Jan 2003 Posts: 95 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2003 Posts: 95 | Dan
hang in there you made it through a real tough part. Tears are fine the smiles and joy will come in time. When you beat this dispicable disease.
keep going
Diane | | |
#42695 08-08-2003 02:27 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Dan, the fact that your lymph nodes were not involved is FANTASTIC! As much as you have gone through, you did it in a timely manner so that the cancer did not get chance to spread and that is what we all want. Good for you! Now you have read enough about taking recovery one day or even a few hours at a time, but it is true that there will be days when you see no progress, and others when you shine. Expect that and know that whatever you are feeling, others have been exactly there and come through it. But never forget for a minute that your non-involved lymph nodes is definitely something to celebrate! Joanna | | |
#42696 08-09-2003 02:17 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | GREAT news Dan! tears are a health benifit.
My family and I just got back from a week of sailing the Apostle Islands (northern Wisconsin for those of you who aren't Green Bay Packer fans). This is a repeat of a trip we took 2 years ago. I was then 3 months post radiation. Yes you can heal and yes life can go on!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#42697 08-09-2003 04:13 AM | Joined: Jun 2003 Posts: 41 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2003 Posts: 41 | Dan,
Glad to hear that your surgery went well. I don't have much strentgh yet myself (one of my meds doesn't realy agree with me) but things are moving along slowly. But they are moving....
Just keep your spirits up, its what I'm trying to do and it does help. I'll be keeping you in my prayers.
Peace,
Fr. Mike
Fr. Mike
SCC on the base of tongue, right side. T2 N1 M0. July 25, 2003 partial (40%) glossectomy, forearm flap reconstruction, right side neck disection.
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#42698 08-09-2003 05:18 AM | Joined: Apr 2003 Posts: 28 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2003 Posts: 28 | congradulations,Dan! no nodes is good nodes....you are in my prayers,Susanlaura | | |
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