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Joined: Oct 2004
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katrina Offline OP
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Joined: Oct 2004
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I continued on the wild goose chase involving my mouth & neck lumps, bumps and swelling this week. As sent by my new GP, I had an EGD which was normal. I then saw the rheumatologist who indicated that bloodwork done early this year was normal.

So, after 2 GP

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Good News Katrina ...sounds like you have been poked and prodded from all ends.
We are very happy for you.
Take care
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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Good News Katrina ...sounds like you have been poked and prodded from all ends.
We are very happy for you.
Take care
Marica


Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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Katrina, Glad to hear all appears OK. Suggest you keep your eye on the situation, though, and have regular physicals and exams as your team feels is appropriate.


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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katrina Offline OP
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Thanks! I wish I had a "team" Kirk! I only have docs who deal with one little area and won't venture out of that speciality - so none of them communicate frown and unfortunately, nothing gets addressed. Cie La Vie! Marica, you're a sweetheart. Happy Halloween to everyone!

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Katrina,

You have certainly received news you should cherish and you should enjoy every day...worry free until someone proves otherwise. You have touched on what I feel is the most difficult situation we have to face in healthcare: the severe compartmentalization. The insurance companies forced it on us, in my opinion, trying to get us away from the family doctor by paying the specialists more money which created more specialists and soon we see 5 doctors instead of 2. That sure helped control the cost, eh?

I am happy for you. I am so happy I would trade places with you if I could. Actually, I would not wish that upon you. Take care and use the knowledge you gained from hanging out in the hood to help others in our situation.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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katrina Offline OP
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Thanks, Ed. I try for the worry free part, but since I still don't know what the lump is, worry sneaks up on me once in awhile.

I've got horror stories about insurance companies and my son! I agree that they way things operate now, it's no wonder the price of medical care.

Regards,
Kat


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