#41910 10-15-2007 05:25 PM | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | Hello All,
I am Amy, Minnie's favorite daughter. =)
We are currently exploring options for chemo and re-radiation. Our Doctor wants us to wait until the first of the year to check and see how her neck looks before he operates if it's necessary. We are not entirely comfortable waiting. She wants to find a program that will offer her chemo or re-radiation. CLinical trials...something..I am having a hard time finding one. Any suggestions would be greatly appreciated.
Thank you all for the support you have given to my mother.
Amy
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
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#41911 10-16-2007 02:40 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Amy...no opinion on this one, but love to Minnie!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#41912 10-16-2007 03:10 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | To Minnie's Amy from Ozarks Amy: I am "out on a limb" here, but I think that youall know what radiation does to the body. If it were me [and John and I had to make the "re-radiation" decision], I would ask alot of questions of Minnie's Docs. Minnie has a Zest for life and Quality of life. If her Doc is advising one thing and you all want to persue something else-please be sure you understand the consequences of the alternatives, and to my knowledge, chemo is not as potentially harmful as re-radiation. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#41913 10-16-2007 03:22 PM | Joined: Aug 2007 Posts: 42 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 42 | I am mostly concerned with the fact that her Dr wants her to "wait and see" about her neck and the fact that he did not rebuilt her tongue with the free flap or do anything with the hole that is now left on the floor of her mouth. Mom is not willing to wait untill the new year to re-test her neck and neither am I . I do not understand how one day it is cancer in 2 nodes then the next there is none. Then the third day they say it might be. She wants the most agressive treatment possible. I just arrange what she asks....I am her servant.
Lost my mother, Minnie, to Oral Cancer October 29th, 2008. I am so thankful she had the OCF to help her through her five year struggle.
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#41914 10-17-2007 07:44 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | A few years ago in Europe they did some clinical trials for re-irradiation of recurrent H&N cancer. The collateral damage was less than was anticipated as I remember. There is one currently going on a UoW. See http://www.mcw.edu/display/router.asp?docid=15349 Some of the following studies may already be completed, so the links are purely informational. Hopkins had a phase three trial which is now closed but here is some info on it: http://www.radonc.jhmi.edu/html/trials/trial_R0421.html Hopkins Results: http://jco.ascopubs.org/cgi/content/full/24/17/2603?etoc Fox Chase: https://www.protonet.fccc.edu/cgi-bin/protocol/proto_summary.cgi?primary_site=Head+%26+Neck I would explore EBT as well. See: http://www.protons.com/proton-therapy/conditions-treated/head-and-neck.html Hope this helps
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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