 
#41900 10-15-2007 06:20 AM | Joined: Oct 2007 Posts: 2 Member | OP  Member
Joined: Oct 2007 Posts: 2 | Does anyone have any experience with Hyperbaric treatments for Osteonecrisis of the jaw? Reaiation has left me with tooth and jaw problems and this has been suggested to reduce/slow down the impact of the problems.
10/14/05 Right neck dissection 3 of 34 lymphnodes Squamous Cell Carc., Chemo,35 radiation treatments, occult primary, lymphoderma&Osteonecrosis of the jaw
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#41901 10-15-2007 01:22 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | P/Roy,
First of all I suggest that you read the first thread on the Forum called "New here? Read this first!"
In order for you to find out more about these two things, let me help you out with the correct spellings: Osteoradionecrosis (ORN) and hyperbaric oxygen (HBO)
The first place for you to look is to use the search engines on the forum as described in that thread.
If you do a google search using the correct wording I have given you above you will find enough information to keep you busy for quite some time.
Hope this is helpful.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#41902 10-16-2007 06:14 AM | Joined: Oct 2007 Posts: 2 Member | | OP Member
Joined: Oct 2007 Posts: 2 | Jerry, sorry I didn't conform to the rules and regulations of the web site, it WON"T happen again! Have a nice day.
10/14/05 Right neck dissection 3 of 34 lymphnodes Squamous Cell Carc., Chemo,35 radiation treatments, occult primary, lymphoderma&Osteonecrosis of the jaw
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#41903 10-16-2007 06:57 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Hey Roy,
I think Jerry's post was just intended to help you, not to tell you off!
It's just a case of 'starting at the beginning' is often more helpful and saves you time!
Keep asking questions and everyone on here will be more than willing to either answer you from exerience, support you, point you in the right direction, or just sympathise!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#41904 10-16-2007 07:48 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hey Roy
Welcome to OCF.This is a brilliant site to find all the information you could possibly need about your condition and treatment options.All that information is ably backed up by the help and advice on offer from both health care proffessionals like Jerry and also the many many survivors and patients in treatment who have already trod the path you are embarking on.
We are all here ready and waiting
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#41905 10-16-2007 11:21 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Roy,
Sorry my post came off wrong. As Brenda said, I was just trying to be helpful. Because many newcomers don't know how to use the site (me included when I first joined) Brian was kind enough to put together a helpful guide.
I hope you have had a chance to read it and get familiar with all that the OCF has to offer.
If any of your questions are not answered by searching, don't hesitate to post them here. As you will see, there are many knowledgable people here willing to jump in and help.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#41906 10-16-2007 02:36 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | PRoy: Welcome to OCF! Sounds like you have been dx with something similiar to my husband. Keep us posted as to your progress and let me know via pm or email if you have specific questions that we might be able to help you with.
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#41907 10-17-2007 01:08 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Roy,
You will find much helpful information on this site and many members who are willing to offer advice.
If you peruse the forumn you will find threads that answer some of the questions you have about hyperbaric oxygen treatments.
E-mail or PM me anytime.
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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#41908 10-17-2007 04:38 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | I think that with the absence of continuing dialog we can consider this thread over. NO reply by weeks end and I will close it. I emailed the original poster yesterday and got no reply, explaining that no one wished anything more than to help them. Our board seems to have many thin skins on it these days. If it is us, we should be careful in our wording, though my gut feeling is that this is the most sincerely caring (especially about total strangers) group of people that I have ever had the privilege of knowing.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#41909 10-18-2007 02:59 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | The original poster replied to me to day and while thinking me for my time to email him but thought our terms and methods too 'parochial' for his liking. I offered to answer his questions on the phone, but have heard nothing. I hope he finds the answers he needs at some other resource. I have found in dealing with the public that you cannot please everyone, and that is not indicative that you are not trying to do good deeds and help. This thread is now closed.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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