 
#41396 06-19-2007 04:42 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello all
This is most likely an extremely rare and isolated situation and is intended to bring awareness, not panic.
Jury deciding if pain patch leaked, killing man, 28
By JANE MUSGRAVE
Palm Beach Post Staff Writer
Tuesday, June 19, 2007
WEST PALM BEACH
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#41397 06-19-2007 08:17 AM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | OMG-thats freaky. I am also taking Fentny, with either Oxycodone or Vicodin and an anti-depressant. Should i call my docs and see what they say? They all know what I'm taking but now I'm freaked out.
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#41398 06-19-2007 10:07 AM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Petey--I'm all for awareness---but sometimes people can have an unexpected reaction to any substance, or find a piece of glass in some foodstuff!
I can see where you're coming from--have a friend who's a 'thalidomide' baby---but do people already in pain with lots of issues suddenly have to deal with this as well???
100 cases in entire nation? Hmmmmmm
Jordan, please don't freak---speak to pharmacist about your combinations---he's the best one to set your mind at rest!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#41399 06-19-2007 11:14 AM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | Brenda-my mom said the same thing- I guess I don't need to start worrying about this now. I've been on this combination for months.
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#41400 06-19-2007 03:39 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Toward the end of the 1st yr of my husband's tx, we had amassed more prescription drugs than I could keep up with. I started meeting with our pharmacist on a regular basis to talk about all the meds. John was on. On several occasions he alerted me that the combination was not so good and I would call the Docs to rethink the situation. Our family Doc got him in trouble on several occasions[trying to be helpful]. You really do need to be vigilant about the drugs. One of the drugs John absolutely could not tolerate was Fentanyl. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#41401 06-19-2007 05:22 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I know we had a death here due to the fentalyn patch . A young kid like 19 a year ago. Some one broke into a house of a cancer patient that had passed away ( so they had to know her) and stole the patches... They were "selling" them at a party and one kid ATE 2 or 3 and we know how that turned out. I swear somtimes people just dont use things as they are supose to,
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#41402 06-19-2007 11:26 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | We have had many discussions in the past on safety precautions for using Fentanyl patches. But I will briefly repeat them:
1. Use gloves when applying them.
2. NEVER use a patch that has been torn, damaged or leaking.
3. Follow the directions for use very carefully, especially storage and disposal.
Like many others here, I can attest to the effectiveness of Fentanyl (AKA Duragesic) for maintenance of my pain. I probably wouldn't have survived without it. Like electricity, it is very powerful, benefical but dangerous. You must respect it and be very careful about it's use.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#41403 06-20-2007 03:36 PM | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | Petey, Please send any news articles to me or Sheldon to put up in the news section of the website and don't post them on the boards. Personally I think this story doesn
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#41404 06-20-2007 05:07 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Brian
I will adhere to your request. I did stress your concerns in the first sentence, but I will follow you lead.
Sincerely, Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#41405 06-20-2007 06:25 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I agree brian ..everyone reacts differently to things and in the case I was refering to ..MAN was it ever wrong 1st it wasnt even prescribed to him and he ATE them not one but two or three !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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