#4118 10-20-2004 09:52 AM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Yep you heard it from me, hot off the press, NEWS FLASH NEWS FLASH, THE TRACHE IS GONE!!! I am thinking about having the DAMM things mounted, that is how long I had it...I was never so happy as when the DOC said how about us getting rid of that thing today...I started BAWLING I mean I lost it.. I am so so sorry for those of you that have to have one forever,,,,,I just don't know about that, But I would have if that is what they said. So I traded in one thing for another. By this I mean the Doc put some gauze and some paper tape and these little things called STRERLE_STRIP. Lord went to change it last night, when you pull the strip off the skin comes with it. I let out a scream, well it was to me, lol, and I just sat down shaking and cried..Yes mamm or sir,,,,that hurt. So now all in front and the sides of my neck has chunks of skin missing..So I can't put that back on HELL who would want to. So I fixed me up something of my own.....A gals gota do what a gal
s gotta do. It still is stinging like crazy but I will live....Thanks to all of you for listening to me all these months about it and helping me will it....Thank you so very much...I am still trying to get the THERABITE. I cannot find ANY thing about the DYNASPLINT. So if someone could help me with that one..Take much care always Vicki | | |
#4119 10-20-2004 10:16 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Vicki, I emailed you privately with the Dynasplint phone #, etc. Sorry you didn't get it. Email me if you want it, maybe I don't have your correct email address. So happy for you having the trache removed. One Day at a time is all we can do....God Bless you!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#4120 10-20-2004 10:18 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Miss Vicki, I am so happy to hear you got rid of your trache. I never had one so I don't totally relate to your getting rid of it, but I have seen them and I don't ever want to have one. So I am very happy for you that you got rid of it. One step at a time and I will pray for you again tonight.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
| | |
#4121 10-20-2004 10:27 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Vicki,
That is such great news! I know this has been such a long ordeal -- I just hope now you'll see some real progress, a bit at a time.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
| | |
#4122 10-20-2004 10:33 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I said that 30 years ago as I watched a guy in a restaurant smoking a cigarrette with one and now I am one. I guess the temporary ones are worst than the permanent one I have. Other than not being able to swim or sing, it is hasn't stopped me from much else. When that is the only choice, you take it. I too hope noone else ever needs the surgery I had.
So happy for you Vicki!
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | |
#4123 10-20-2004 10:48 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Vicki,
I can only imagine what a wonderful feeling it is for you to be rid of that thing. I HATED having one and fought hard to get it out. I only had it for a few days and that was MORE THEN ENOUGH. I have tender skin and my neck was a mess by the time the hole healed over. It took about 3 weeks and it drove me crazy. I found some good tape for sensitive skin and I would fold over some 4x4's and cover the hole with that. I was told it would heal quicker if I pushed on the hole with my fingers anytime I talked so I made sure to do that. I also found that the skin seemed to toughen up after a few days and didn't hurt so much.
I'm so happy that you are making strides, I think about you alot.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#4124 10-20-2004 11:22 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Miss Vicki,
I am so glad that you have that darned thing gone, finally! You just about had me bawling for joy, too. I never minded you saying anything about it and I wished I could have done more to help you. Anyway, it is gone and that is great news!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#4125 10-20-2004 01:43 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Miss Vicki,
Congratulations...yeah no more trache!!! I remember how happy we were when the doc removed Dan's. He also had pretty good tape and we bought 2x2 gauze pads to fix under the tape. It also took Dan about 3 weeks for the hole to close up and he also pushed on the hole when trying to talk. It was one of the hardest things he went thru and you have had it so much longer. I am praising God that you are finally rid of it!
God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
| | |
#4126 10-20-2004 05:36 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Congratulations Miss Vicki What a positive step for you in your recovery.  I can see your smile from here! Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
| | |
#4127 10-20-2004 05:56 PM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Congrats Vicki! Be careful when it does close up & don't get too boisterous & pop it back open like I did! I was having an angry fit & yelled & screamed in frustration at my situation & ripped that baby right back open & then it healed funny looking. It looked fine before I did that to myself! Take care!
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
| | |
| Forums23 Topics18,246 Posts197,130 Members13,317 | | Most Online1,788
Jan 23rd, 2025 | | |
|
