#40966 04-15-2007 10:34 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Rob had a hole round his mouth and nose which i think helped a lot,and like Minnie he counted down his treatments.By the time he had had 14 treatments his mask was so loose he couldnt feel it.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#40967 04-16-2007 03:33 AM | Joined: Feb 2007 Posts: 77 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2007 Posts: 77 | For me the mask and the machine were a challenge in learning how to keep my mind off that which was really bothersome and at times fearful.
I had a few "freak out" moments with the mask (and its companion - the wax coated tongue depressor), especially on the first day when they were adjusting the machine - it took a long, long time. I had to talk myself back to calmness.
During my daily sessions, I would click my feet together and count (one-one-thousand, two-one-thousand, ....) every second the machine was "on", and use my fingers to keep track of every 1 minute interval. The rad techs played music which also helped. If I was feeling bad on a given day I would tell them, and they would remind me that they were watching me during the session and would intercede if I indicated I was having a problem.
I could occassionally open my eyes a little, but there was nothing to watch but the machine moving around, and I didn't have much interest in that so I mostly kept them shut.
Best wishes,
Chris
SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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#40968 04-16-2007 08:06 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I brought my own (custom made) CD (of thumping Andre Crouch and Michael W. Swith)and played it every day - must have driven the techs crazy. I knew exactly where I was at in treatment by what song and verse was playing. The first day I forgot and they stuck some new age stuff on there and it seemed to take an eternity to get through it (like "Time" by Enya. Go with uptempo is my advice. The techs went all out to make it as comfortable as they humanly could and like others have stated watched my very closely.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#40969 04-16-2007 03:12 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | Peace4uall, I hope today went better for you.. I think after you get about 2 or 3 times done it gets better. Then you will start counting like the rest of us did. When you are all finished with treatment they will give you your mask, and then you really can take all your frustration out on it..  Just think about that. Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#40970 04-16-2007 03:39 PM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Jan 2007 Posts: 346 | Thanks to you all, I made it,took the xanax they told me to and my husband dropped me off at home and went back to work.. I woke up 4 hours later in the chair with my coat still on. HAHA I quess whatever works, now I am a druggie. I am so glad I made it through this first thing. many weeks to go, just one day at a time. I counted, by the way, which I read on here. I hope I will get through the first day with the real machine- just pray for me, and thank you for listening
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO. Had 14 hour operation which included reconstruction of jaw. Reconstruction failed. Some radiation, no chemo. | | |
#40971 04-16-2007 07:13 PM | Joined: Jan 2007 Posts: 50 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2007 Posts: 50 | Peace,
I'm happy you were able to make it through. You have the right attitude. One day at a time, and don't be ashamed about using drugs. This is a very difficult time for you and your family. I was relieved when my husband got medication to calm him down. I hope it will get easier for you as you get more treatments. Not that I'm comparing MRI with what all of you are going through with the mask...but I am claustrophobic and really had a hard time with an MRI I needed. I ended up taking valium..when back to work..and woke up in a chair at quitting time with no recollection of how I got there. I walked across the street from the hospital to my office. But I don't remember the MRI and that is the point after all. So do whatever it takes to get through it. Vicki
Care giver for Stage IV Base of Tongue TXN3M0 Neck Dissection 1-9-07 IMRT & 8 weekly Cisplatin 2/20/07 - 4/17/07
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