#40824 03-22-2007 10:04 AM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2007 Posts: 61 | I just finished my 19th treatment and all water tastes terrible. My water at home used to taste fine. When that started tasting
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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#40825 03-22-2007 11:41 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | By the 19th Tx I couldn't bear anything but room temp anything and nothing tasted good so I just swallowed whatever I could, whenever I could or felt like it.
Hang in there.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#40826 03-22-2007 12:54 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Oct 2006 Posts: 209 | Dannon Spring Water is the only water Mike can drink. We have good tap water, he can't tolerate it either. Could not tolerate Aquafina, or any other brand of water but Dannon.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#40827 03-22-2007 01:45 PM | Joined: Sep 2006 Posts: 42 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2006 Posts: 42 | Orange Gatorade was the next drink of choice for my husband next to water during treatment. ------------------------------------- CG to husband, SCC Stage IV, left tonsil, 3 lymph nodes, age 56, HPV+,Tx 06/06-08/06,IMRT,cisplatin/tarceva, neck dissection 11/06
MARTY-Caregiver to husband (non-smoker/non-drinker)Dx 04/06 SCC Stage IV left tonsil-3 lymph nodes,HPV+,Tx 35xIMRT,35xcisplatin/tarceva,neck dissection 11/06, beginning HPV vaccine JHopkins 04/07.
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#40828 03-22-2007 03:05 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | Funny how it all hits us differently. I could only drink very cold Aquafina and that was it. I remember trying to explain this to my wife when she came home with Ozarka and it didn't make sense then. Now I can drink any water.
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#40829 03-22-2007 04:34 PM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Jul 2006 Posts: 446 | I was the same as Tim. It had to be bone cold, and bottled. Tap water wouldn't work. I still like it cold the best, but I can drink the tap water at home O.K., although it still doesn't taste quite right Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#40830 03-23-2007 01:05 AM | Joined: Feb 2007 Posts: 77 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2007 Posts: 77 | Maybe it would help to drink water through a straw?
SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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#40831 03-23-2007 06:08 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Mine had to be ice cold and only brand was Great Bear. Everything else burned including tap water. Try the bottled water in the radiation dept and if that tastes good, maybe you can buy that brand.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#40832 03-23-2007 07:25 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | You guys do realize that "Aquafina" is nothing more than local municipal tap water that has been filtered. H20 is H20, only finely developed taste buds are going to be able to detect the subtle differences in bottled water and I'm talking about the good stuff like Fiji or Pellegrino. Radiated taste buds are not going to have the ability to make that distinction.
For what it's worth I drank 12 oz bottles of Calistoga, sold in the economy 35 packs (mainoly out of convenience). Now I have a hot and cold water dispenser and buy water in bulk using my own reusable 5 gallon containers (6 bucks at Walmart) from Safeway, which merely filters the tap water and it tastes just fine and is only 33c a gallon. I also eliminated a lot of plastic from the waste stream.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#40833 03-23-2007 10:56 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | For what it is worth Gary, taste was not my problem. It was what irritated the mouth the least and that I think had to do with what trace minerals deposits were in the water. I'm on city water which is good water, but couldn't hack it during radiation. I'm not into designer water, but did find bottled water from certain springs more tolerable than others. I buy mine at 87c a gallon to eliminate plastic from waste.
Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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