#40785 03-09-2007 03:16 AM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 61 |
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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#40786 03-09-2007 03:58 AM | Joined: Dec 2006 Posts: 11 Member | | Member
Joined: Dec 2006 Posts: 11 | Are you getting your Ethyol IV or sub cu? I'm getting mine sub cu and have had no problem with nausea so far. I've had every other symptom, but no nausea :p
SCC, Right tonsillar fossa, T4N2M0, Dx 1/12/07
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#40787 03-09-2007 04:33 AM | Joined: Feb 2007 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 61 | sub cu. I get a shot in each arm 30 minutes before radiation. I take a Clariton each day so I don't get a rash at the injection site. The 2nd day I received Ethyol, I had severe vomitting. Of course, I haven't been sick since 1987 (morning sickness), so I'm a real wimp. What is severe to me, may be nothing to someone else. They put me on Compazine, which worked some. Then they added Ativan, and I thought things were okay. My son is coming home for college break today, and I don't want him to see me sick. I'm hoping I don't have to choose between being comatose and vomitting.
SCC, right tonsil, T1N0MO, G3, HPV-33 positive, 7 wks IMRT 2/21/07-4/13/07, 48 year old female when diagnosed, non-smoker, weekend wine drinker, tumor and both tonsils removed. Ethyol for 3 weeks; no peg; only minimal longterm side effects
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#40788 03-09-2007 05:13 AM | Joined: Feb 2007 Posts: 77 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 77 | When I was taking Ethyol shots daily, which made me feel nauseous, I found that Zofranm, taken 3 times per day, really worked well.
SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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#40789 03-09-2007 06:30 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Ethyol is tricky stuff - quite a few here have not been able to stay the course because of adverse side effects.
I had IMRT and got most of my salivary function back, with the exception of the right parotid which was directly in the beam path. So if you do have to quit, it's not an automatic salivary death sentence.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#40790 03-09-2007 09:58 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2007 Posts: 176 | I made it thru 7 treatments before being taken off the Ethol. My saliva after 37 3D rads is back to about 85 or 90%. L-Glutamine (salivary) and 150mg of Zinc (taste buds) may have helped also, but 7 treatments seemed to work quite well.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
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