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#40601 12-31-2006 12:36 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Andrea,
I found Biafine far superior to the Aquaphor which seemed to do nothing at all.
I went into radiation with some open mouth sores on the gums left over from biospies to try to find the primary. I was told that they should still heal but at a slower pace. Since radiation is cumulative they expected them to be healed before the really bad stuff hit. Most did, but one didn't because of location and dry mouth, my tongue was constantly keeping it open. It eventually healed several months after radiation was over but dental surgeon was monitoring it every two weeks for problems. If your surgeon thinks it is ok to start, I doubt there will be a problem.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#40602 12-31-2006 12:55 PM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Nelie, Yup off to a grand start, we can only take this New Year one step at a time at my house!
Eileen, The surgeon's opinion is the one thing we are awaiting at this point, Doc Radiator is going to confer with him Tuesday to see what he wants to do about the potential problems with the lymph nodes (and BOT hypermetabolism that showed up on the PET scan.) I am hoping they opt to radiate my neck bilaterally (I can't believe I just wrote that!!) I would hate to shoot my last bullet at this thing and then realize we missed a spot!
They tell me they can't operate again on the left side so I am running out of ammunition.
Hmmm, I detect a trend in my metaphors!
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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