#40444 10-30-2006 04:15 AM | Joined: Apr 2006 Posts: 20 Member | OP  Member
Joined: Apr 2006 Posts: 20 | My husband is 6 weeks post op modified radical neck he also had 39 IMRT and 3 Cisplat tx finishing July 21.This is my concern.He has alot of laryex swelling and difficupty swallowing.He is sticking to soft foods but it is hard watching him coughing thru each meal.Has anyone experienced? this will it go down? The ENT suggested steroids but we opted to wait awhile longer Thanks Laurie | | |
#40445 10-30-2006 01:43 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Laurie,
As you can see I had essentially the same Tx sans the operation. I am only 9 weeks post Tx and can eat and swallow anything so I would look to the surgery as the likely cause.
Hope things improve.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#40446 10-30-2006 04:04 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Laurie,
Swallowing difficulties have been a problem for lots of us on this site, but not all of them have been surgery-related. I had surgery before radiation, and had many more swallowing problems after radiation than after surgery. I never had a PEG tube, so I went through periods of having to swallow a diet that was almost completely liquids, then moving on to soft foods in very small bites (it seemed like every meal took at least 2 hours because I could only swallow tiny amounts at a time, and I needed tons of water to try to wash them down my throat).
It's important for your husband to try to keep working the swallowing muscles. If he continues to have problems, his doctors may need to check for a possible blockage.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#40447 10-31-2006 04:24 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I was not given a tube during Tx (which I approved) as my RO said there were more complications post TX with the tube than w/o the tube.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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