#40242 09-02-2006 05:30 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Clint, When you go for the meeting with the team giving a second opinion, see if you can bring a tape recorder as you will likely be getting a lot of info. very quickly and will want to review what was said more than once. Also, it's a good idea to bring a friend or someone who can help be an extra pair of ears. Also, I would write down a list of questions you have first to make sure you have them all answered.
Good luck with it all. I know for me,one of the most stressful times in this whole process was when I went for my second opinion and was getting disagreeing recommendations about treatment from pople locally. There was just so much to process quickly and over what was a really critical decision! Please come back and let us know what you hear from th biopsy results and the second opinion.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#40243 09-05-2006 02:23 PM | Joined: Aug 2006 Posts: 77 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2006 Posts: 77 | Well, I got the biopsy results. The bottom line is that there were "some cells suggestive of a neoplasm," but nothing conclusive.
Now they want to do a real surgical biopsy. Any opinions?
Clint
Age 46; SCC BOT T3N1M0l dx 9/06
Cisplatin x3; radiation x42
Completed tx 10/31; Selective neck dissection 12/06
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#40244 09-05-2006 03:21 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | If it were me, I'd do it so I could sleep at night. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#40245 09-05-2006 03:41 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Been there, done that, it was SCC. Why wait? Results same day. Beats worrying. Once you know what you are dealing with, it is a lot easier to make decisons.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#40246 09-05-2006 04:48 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Clint, you can't possibly be hoping anyone on here will give the opinion for you to just move on and not check this out. You obviously need a surgical biopsy. Schedule it, get it done so you know what you're dealing with. Dragging this out and avoiding possibly hearing what you DON'T want to hear isn't the right way to go. You'll feel better once you KNOW.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#40247 09-05-2006 05:22 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Yup. You need a surgical biopsy and to get answers as soon as possible.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#40248 09-06-2006 05:00 AM | Joined: Aug 2006 Posts: 77 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2006 Posts: 77 | It's scheduled for Monday. Y'all please keep your fingers crossed.
Clint
Age 46; SCC BOT T3N1M0l dx 9/06
Cisplatin x3; radiation x42
Completed tx 10/31; Selective neck dissection 12/06
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#40249 09-06-2006 03:20 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Clint-fingers and toes both-as my 29 mo old granddaughter says.  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#40250 09-07-2006 05:01 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Yup, I'll cross whatever appendages I can too Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#40251 09-07-2006 12:32 PM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | Clint,
You have the number, call if you need to talk. If you don't have it, PM me. I will be in the office tomorrow.
Thinking of you!
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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