#4008 10-06-2004 04:19 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hey all,
I was driving home yesterday and noticed that I have a small lump towards the tip of my tounge.
Of course this freaks me out. It hurts a little but I cant leave it alone either. That might be why it is getting sore.
I know it aint cancer until they say it is.
I am going to my oncol today to have him take a look at it.
Any thoughts?
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#4009 10-06-2004 05:33 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Robert,
I'm inclined to invoke the two-week rule again here. Little lumps, sore spots, etc., can crop up like that and sometimes disappear again within a week or two. If you watch it periodically and it hasn't improved by the end of two weeks, it's probably worth a doctor's visit.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#4010 10-06-2004 05:40 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Robert,
It's natural to feel every bump or pain is something to be concerned about. I think you are doing the right thing having your on'gist look at it today. I don't believe in waiting any longer than I have to. Hoping as Cathy stated it's nothing at all.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#4011 10-06-2004 06:15 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Robert
Hope that it it nothing to worry about, but what the heck that's what Docs are for, so come back and let us know how you got on.
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#4012 10-06-2004 07:16 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Robert,
I am the queen on here for having new things pop up in my mouth. None of them have been anything to worry about although they have caused me some sleepless nights. Most of my issues come from radiation or trauma I am causing to my mouth. Please let us know what your doctor says.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#4013 10-06-2004 06:39 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Yup get it checked, but I think the tip or top of the tongue is not a common site for this cancer. I have freaked out from things seen in my mouth only to find they were nothing to worry about.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#4014 10-07-2004 08:10 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | As my ENT says, ..."you seem to have a nack for bumps and sores in your mouth and that is the norm, unfortunately, from here on out"... The only way I seem to get rid of them is to schedule and doctor visit and sure enough, the morning of my appointment, they are always gone.
I hope there is nothing to worry about, Robert, but I will be thinking of you often while you get it checked out. My wife has taste buds that swell up from time to time and I never had that happend until after radiation and now it is quite often.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#4015 10-08-2004 05:42 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Hey Robert,
I get sore spots and occassional bumps in my mouth as well. These used to freak me out too until my doc said that he's only interested in something lasts at least two weeks. So far, none of these things have lasted more than a few days and it's been nothing to worry about except to be more careful with the chips and salsa!
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#4016 10-08-2004 04:13 PM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Hi Robert,
Hope all goes well, better the peace of mind than needless worrying. It seems perfectly normal for the survivors on this forum to be wary of ANY & ALL changes in the oral cavity or throat & neck, for that matter. PS. I got a strange,sore,ulcer-like taste bud when I first tried buffalo wings after my surgery, turned out it WAS an inflamed taste bud!
Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#4017 10-09-2004 03:13 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi everyone. I went to my oncol and he told me the same thing Mark did. He has never seen it on the top of the tounge. The two week rule is in play here. However it has already gone away.
Man that was scary.
Thanks for talking me off the ledge as usual everybody. Have a great weekend.
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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