#39384 10-31-2005 11:41 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
Had a new PEG tube inserted this afternoon. My weight was tracking downword due to swallowing problems. Normal weight was 145 before cancer and had it up yo 140 during last tube feedings over a year ago. Had the first PEG removed about one yesr ago.
They told me to maintain my current weight of 126 & look like a bag of bones would take 2000 calories per day. To gain weight at a rate of one pound a week input 2500 calories per day.
Thank God for insurance!!!! I am still going to work on my mouth opening with the Therebyte device and will keep trying to eat as much orally.
Went for my thrid round on the new chemo this am. (Visblastin) Given in injection form. A much shorter duration in all. 20 minutes of pre-meds for nausau, the injection and 10 more minutes and I'm done. Will continue to fight this bastard of a diaesae until I win or lose.
Thanks for everyone who has supported me during the last 2-1/2 years. You all have made me a better human being. Thank you for that!!
I still feel fine and hope this weight gain will give me back some stamina. I tire real easy.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#39385 10-31-2005 01:21 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Danny, I suspect it is the other way around-you have made many of us better human beings. Keep fighting. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#39386 10-31-2005 01:29 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Danny, I hope you can pile on the pounds with the help of the PEG and that it makes you stronger. I'm rooting for you.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#39387 11-01-2005 05:48 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Danny-
This just gives you an excuse to drink milkshakes!! Add half and half to everything to help pile on the calories, too. You have many out here in cyber land supporting you wih prayers for strength to continue the fight! Love - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#39388 11-01-2005 06:32 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Danny,
I'm here rooting for you. With the help of the PEG and the holidays coming with all those desserts and other sweets, you should be able to add some pounds.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#39389 11-01-2005 06:46 AM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | Were pulling for you Danny! Your fight is inspiring to all!
With Love,
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#39390 11-01-2005 07:55 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Danny Boy, Thanks so much for the update. Hope your weight and strength comes back soon!
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#39391 11-01-2005 09:13 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Danny
Get some red wine dowm the peg!!!!!
love ya
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#39392 11-01-2005 09:56 AM | Joined: Jun 2004 Posts: 85 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jun 2004 Posts: 85 | Hi Danny,
What a pain to have to keep up the calories. Something that you took for granted and now it becomes a chore. But....suck it down boy!!! We want you to pack on the pounds. Your insight and encouragement are welcome joys to our hearts.
So is golf season over for you up there in Wisconsin? I hate to rub it in Danny Boy, but today, down here, south of Atlanta, we have perfect golfing weather. 71 degrees. Please do not send down your cold front. I will swing a few clubs in your honor and if I have a bad shot then it was YOUR swing and not mine.
Love you and stay encouraged my friend.
Love, Brenda
T1N0M0 Partial Glossectomy 2/04, Recurrance w/ another P.G. 5/04. IMRTx33 7/04-9/04. T2N2M0 recurrance in throat, 11/04.
2nd tumor 1/06/05, Chemo 1/11-05 Died 02-16-05 Wife: Brenda
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#39393 11-01-2005 11:38 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Love you Danny Boy!!!!Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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