#39308 10-14-2005 09:32 AM | Joined: Oct 2005 Posts: 14 Member | OP  Member
Joined: Oct 2005 Posts: 14 | Hi all,
My doctor talks so fast and i don't see him again until 10/26/05 to follow up on my partial glossectomy. I think he said margins are great, but spots of dysplasia are present. Maybe I'm just being paranoid, but doesn't dysplasia always turn into cancer (given time).
This board has been a godsend. Finally, a place where I don't feel so alone.
Jenn
Biopsy results received: 9/28/05 Partial Glossectomy right side 10/5/05 - 2 good margins - severe dysplasia on the 3rd margin...
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#39309 10-14-2005 10:11 AM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Frequently, but not always, certainly often enough to worry me.... I would want any surgical only solution to be complimented by radiation, especially if dysplsia were present in the margins. A second opinon from a radiation oncologist might be in order.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#39310 10-14-2005 10:55 AM | Joined: Oct 2005 Posts: 14 Member | | OP Member
Joined: Oct 2005 Posts: 14 | MY ENT that performed the glossectomy said he thinks we can consider this a cure. Since my mother died of brain cancer 3 years ago, I'm not really satisfied with that answer. I am scheduling an appointment with the local cancer center. I think that should make things clearer. Part of the problem is I can't really speak yet to ask questions...and it seems like everyone is in such a hurry.
Thanks
Biopsy results received: 9/28/05 Partial Glossectomy right side 10/5/05 - 2 good margins - severe dysplasia on the 3rd margin...
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#39311 10-14-2005 11:20 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Make them slow down to a level you can deal with, I go for my 14month check Monday, my Mum died two weeks ago from SCC of the esophogus(sp) so will need to include my risk factor into it all, why cannot it all be strieght forward...
Still such is life..
Sunshine love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#39312 10-14-2005 11:24 AM | Joined: Oct 2005 Posts: 14 Member | | OP Member
Joined: Oct 2005 Posts: 14 | Hi Helen,
I wish you good news and blessings at your check up. Please let me know how it goes. I could use some good news.
My sincere and heartfelt condolences on the loss of your Mom. It's never easy to lose someone we love...even if we know it's coming.
Blessings,
Jenn
Biopsy results received: 9/28/05 Partial Glossectomy right side 10/5/05 - 2 good margins - severe dysplasia on the 3rd margin...
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#39313 10-14-2005 03:52 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Jenn, bring someone with you to dr. visits, have them take notes and make them wait for your questions. Any good doctor will take the time to explain things well.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#39314 10-15-2005 10:32 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hi helen,i wish you all you wish yourself re your check-up. huggs and prayers an god bless regards ...maz | | |
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