#39259 10-08-2005 03:49 AM | Joined: Aug 2005 Posts: 17 Member | OP Member Joined: Aug 2005 Posts: 17 | My husband was scoped this past week and discovered that his inability to swallow was due to a stricture. His Rad treatment ended 5 weeks ago and chemo ended 3 weeks ago. A swallowing study will be done and a dilation to follow. Has anyone been able to swallow normally after this procedure or will he have to have frequent "stretchings" from now on?
Wife to Tim Right Tonsil CA IV dx 6/24/05, IMRT 36 treatments ended 8/29/05, Chemo (cisplatin and 5FU) ended 9/16/05
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#39260 10-08-2005 05:57 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | DSM, I have not had this procedure, however there are quite a few that have. Some have had to have it done more than once. From what I recall it works quite well. I am sure you will get some replies here in the next few days.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#39261 10-08-2005 06:38 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | DSM, We have patients occasionally who come in for esophageal strictures. I think the body's response to the stretching is very individualized. In other words, your husband may only need it this once, since you are so close in to the time of the radiation treatment, and it may hold him. Or, as the radiation scars heal, he may have to do it again later on. Either way, it is a procedure that is done daily by docs all over the country, and so it won't be hard to find someone who can help you out later down the road if you guys need it. And while NOTHING is risk free, it is something that I have seen extremely few complications from. They start off with a little tiny tube with a balloon on it, move up to a bigger balloon, and so on until they get the diameter they feel is optimum for the patient's anatomy and needs. He may have to have another swallow study after the dilatation to see how effective the procedure was, but if he likes orange-flavored chalky drinks, that's alright. Hope this is a one time shot for you guys and things keep getting better.
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#39262 10-08-2005 09:48 AM | Joined: Aug 2005 Posts: 44 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Aug 2005 Posts: 44 | Is the person awake during the procedure of stretching? I feel so uneducated about a lot of the treatments but not what I have been through. Terry
Terry | 42 female| base of tongue w/swollen lymph nodes | Dx'd-Feb 05 | Stage IVA T2N2M0 | radiation/chemo 8 weeks finished 3rd week May/05 | bilateral neck dissection 9/2/05 45 nodes all neg.
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#39263 10-08-2005 10:15 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | It's done differently for different folks, ask your doc, it seems like you two need to have a chat concerning the procedure, anyhow. Even if you have talked to him already, sometimes we don't catch everything we want to know in one sitting. (I know I don't!). I am sending you a website you can look at, has some good basic info. Your husband may be awake, or slightly drowsied (most likely) and they will numb his throat for him, sometimes they do it in the x-ray department under flouroscopy (Where the doctors can see everything as it moves through, like a x-ray motion picture). http://www.gicare.com/pated/epdgs25.htm Hope this helps some, Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#39264 10-08-2005 10:52 AM | Joined: Aug 2005 Posts: 17 Member | OP Member Joined: Aug 2005 Posts: 17 | Thnaks, Andrea. You are so right about not catching everything the first time. I believe the ENT said it appears the stricture was caused by a mucous adhesion. Will that be harder to dilate? I am waiting to hear from the swallow study technician to set up an appointment. Is there a sense of urgency to getting this done ASAP? Sheila
Wife to Tim Right Tonsil CA IV dx 6/24/05, IMRT 36 treatments ended 8/29/05, Chemo (cisplatin and 5FU) ended 9/16/05
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#39265 10-08-2005 11:06 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2005 Posts: 325 | While I am not a doctor and don't play one on TV, I would think it is not an emergency/urgent situation. You will know if it becomes something you have to fix right away. If things have been going along the same for a week or so, it will most likely wait until the first available appointment. (I hate saying things like that, you have to understand, this is ONLY an opinion!) If he starts having trouble with choking, I would certainly step into a local ER and get things moving quicker, but if he is cruising right now, you should be fine. Is the adhesion mucous, or mucosal? That seems like the same, but truly isn't. Won't make much difference in the procedure, but might be something else to ask. (Make a list of questions as you think about them, then take the list in and get 'em answered.) He is very lucky to have you by his side. The more you know, the more you can help!
Andrea
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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#39266 10-12-2005 09:38 AM | Joined: Aug 2005 Posts: 17 Member | OP Member Joined: Aug 2005 Posts: 17 | Bad news. My husband will have to have the dialtion done through his PEG. It will be a joint procedure with the ENT and GI docs. Anyone else ever have it done? Sheila
Wife to Tim Right Tonsil CA IV dx 6/24/05, IMRT 36 treatments ended 8/29/05, Chemo (cisplatin and 5FU) ended 9/16/05
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#39267 10-13-2005 05:46 AM | Joined: Aug 2005 Posts: 17 Member | OP Member Joined: Aug 2005 Posts: 17 | If there is one thing we all have learned on this board it is to always, always get a second opinion. We had Tim's GI doc take a look at his stricture and he had him dilated through his esophagus this morning without any problem at all. Thanks to everyone for your advice and concern. Sheila
Wife to Tim Right Tonsil CA IV dx 6/24/05, IMRT 36 treatments ended 8/29/05, Chemo (cisplatin and 5FU) ended 9/16/05
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