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#3906 09-30-2004 07:22 AM | Joined: Mar 2004 Posts: 76 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 76 | Got TWO biosies scheduled-one in Nov & one for next week, Oct 8th...Guess which one I am taking...lol. My mom is such an angel, she has been calling hospitals along with me & being my own advocate, the funny thing is tho, the hospital I am going to wanted me to get all my films & faxes & Drs info so she gave me a contact name...her name is Frankie ..same as my mom! Angels are everywhere!
Thinking of you all & hoping for the best.
Tia Maria
01/04 SCC of tongue base, T1N0M0
03/04 Partial glossectomy
04/04 Rad
12/04 Throidectomy(follicular cancer)
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#3907 09-30-2004 10:25 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Good for you! Keep pushing to get the best care possible.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3908 10-01-2004 03:10 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tia Maria,
It sounds like some things are just falling in place. I love your analogy of the Angels everywhere. It certainly seems like they are paving the road ahead of you. I am hoping for wisdom and guidance for your entire medical team to find the best possible plan of action to get you well on the road to healing and recovery. Please keep us posted and if you need anything, we are here for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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