#38668 06-14-2005 09:40 AM | Joined: Apr 2005 Posts: 25 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2005 Posts: 25 | Have started radiation to T2N2Mo scc base of tongue, am in seventh week of chemo, post left neck disection. I hade all my dental work done,couple of crowns, 4 extractions, doing well. Dentist gave me trays for flouride treatment, told me to use them all night. (appears,on line most recomendations are for 10-45 min.)I can stand it only for about 3 hrs. then start to have tooth pain and bleeding gums. Plan to see oral surgeon later today. Tolerating other stuff well. Any great experance out there? Edd | | |
#38669 06-14-2005 03:12 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Edd,
I've never heard of using them all night. For one thing, you're generally not supposed to swallow any of the types of fluoride that I've seen (and I don't know how you could go all night without inadvertently swallowing some of it). I've been told to use them anywhere between 10 and 30 minutes at a time.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#38670 06-14-2005 04:13 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Back when I had real teeth, I used the trays all night, as directed. I put a drop of the fluoride in each tooth segment of the tray and then put it in my mouth. Lot of good that did me (grin). I think the recommendations now are for the shorter periods. The dentist who made my trays was not very experienced with people about to get rad. Edd, the trays pressing on your tender gums could certainly be causing the bleeding. It would seem reasonable to me to follow a shorter schedule as long as you are consistent about doing it. | | |
#38671 06-15-2005 12:04 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | The instructions for the flouride treatment vary but the stuff I use says 5 minutes, max. I had a dental oncologist and my personal dentists son had just completed dental school at UCLA where they have a special course for xerostomia and oral cancer patient treatment issues.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#38672 06-15-2005 03:20 AM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Feb 2005 Posts: 663 | Harry's trays were supposed to be for 3 minutes. But, he wasn't able to use them much because his tongue hurt so bad. He is using them again now but it was about 2 months that he wasn't able to during treatment and shortly after.
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#38673 06-15-2005 10:17 AM | Joined: Apr 2005 Posts: 25 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Apr 2005 Posts: 25 | Thanks to all for your response. My oral surgeon agrees. Will try 20 min. each eve. Untill salivia supply again good. Edd | | |
#38674 07-02-2005 01:01 PM | Joined: Jun 2005 Posts: 10 Member | Member Joined: Jun 2005 Posts: 10 | Mt dentist also made trays for me to use. 2x a day for five minutes each. The radiation doctor I had said that sometimes the floride will turn your teeth brown so if you use them for long periods, check the color of your teeth frequently. I was told that the floride was to make your enamel harder thus less prone to decay. Pulling a tooth AFTER palate area radiation is very complicated due to the jaw bone being damaged and not able to heal easily.
Brian
------------------------- Brian Krause, 7 months & counting SCC (base of the tongue) survivor....
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#38675 03-06-2007 10:06 AM | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2006 Posts: 149 | Ok, so what's the consensus on the length of fluoride treatment.
I was given Prevident 5000 1.1% fluoride and 0.4 stannous fluoride told to use for 45 minutes.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands. Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
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#38676 03-06-2007 10:38 AM | Joined: Feb 2007 Posts: 77 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Feb 2007 Posts: 77 | I keep trays in for 5-10 minutes, then remove and spit out excess flouride. I do not rinse/eat for another 25 minutes.
I do this twice a day.
My dentist says to keep trays in for 5 minutes only then rinse (2 times per day). The tube of 1.1% SF gel (that I use) advises "at least" 1 minute with trays, spitting out excess flouride, then not eating/drinking for 30 minutes.
Chris
SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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#38677 03-06-2007 11:10 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Jan 2007 Posts: 108 | 5 minutes is what my dentist has said as well. In my case, most of my saliva has recovered so it is once a day.
On the issue of removing teeth after radiation, I can attest that it is a delicate process. I had to do HBO treatments before and after I had to get my wisdom teeth pulled post-radiation. 7 weeks total for pulling 4 teeth. But everything has healed.
Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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