#3822 09-27-2004 10:09 AM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 |
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3823 09-27-2004 10:29 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Amen, Bob. What a wonderful time we had. It was SO great to meet so many of the folks here and to make new friends! Well, old friends face to face. My thanks to you, Bob, for making it happen and to all who came. Next year is a "for sure" for me.  Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#3824 09-27-2004 11:04 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | I am happy to email pictures directly but be warned they are hi resolution and very large files (over 1/2 meg each). You will need some bandwidth and the ability to accept large files or they will bounce. AOL and many other ISP's limit attachments in email to under 1/2 meg.
This is a list of individuals names in the photo OCF Friday gang3
front row l-r, JetAgeHobo (Bob), DannyBoy, Danny's Wife, Uptown (Ed)
Second Row, Leah (Gary's Wife), Ingred Hill, Rosie, JudyU, Don, Lorie, Eileen, Eileens Husband
Third Row, Gary, Brian Hill, Kris, Sheldon (ssax), Uptown
Sorry I didn't write all of the names down or misidentified you.
If you went to shutterfly were you able to blow up the image or could all you see were thumbnails?
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3825 09-27-2004 11:21 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Thank you so much Gary...putting the names to the faces made everything so "real".
Bob, you looked kinda dangerous with that gun...we`ll be good honest!
Take care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#3826 09-27-2004 11:50 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | I have video clips of everyone who went shooting also -I will email those to anyone interested. I have a really good one of JetAgeHobo and Mark (AKA "The Untouchables")...
It was very nice to see photos of a lot of you who weren't there - kudos to Danny for a great job, above and beyond the call of duty, for that. It made this whole experience much more personal for me. It was one of the highlights of the trip.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#3827 09-27-2004 04:26 PM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | Gary, the pix were great - I was able to see the 'big' pictures  Everyone looks wonderful and HAPPY! Gotta get to bed - but my beloved 'skins are having trouble tonight  Don't know if I can turn off the set... If you saw the picture of Tom and me (holding a newborn grandchild), you'd have noticed I'd been crying.....I do that a lot lately, but sometimes they ARE tears of joy and gratitude for all the good things God give us all. Love and many thanks, Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#3828 09-27-2004 04:32 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Gary, the pics were awesome..........Thank you! I'm happy you all had a good time and jealous I had to miss it. Bob, unless I orbed into the reunion for a few minutes without even myself knowing it, I wasn't at the reunion with my husband,lol. You have us listed amongst who came. Shall I take that as a clear sign of how much you wish we had come??
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#3829 09-27-2004 07:39 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Minne, that would have been a long story, plus a bad case of chemo brain (that excuse works pretty well) and me trying to remember who was there without using my "cheat sheet." and yes your lack of presence was noted. Santa will bring an extra lump of coal.  I did forget to mention that Rosie and her husband were there, again, if I had been using my list instead of my listless mind I might have gotten it right the first time.  So, see you next year hopefully Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#3830 09-27-2004 10:11 PM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | Yes...it was absolutely wonderful to see and meet everyone!!! I had a great time and though Don was hesitant about going at first, once he met all of you he had a GREAT time! Don says we are starting to save all our pennies so that we can be there next year...no matter where it takes place.
Bob- you did a GREAT job at getting all the 'technical' things worked out...great location and good food. Danny- you are a true inspiration and I will forever be greatful to you for coming up with the idea to get together. Gary- I will be going to shutterbug and looking at all the photos...these are definitely getting framed and will be placed with all my other "family" photos...you are all my true family and I love you!
For anyone who wasn't able to attend, we missed you...please plan on being there next year, I think the more the merrier!
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#3831 09-28-2004 01:33 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | I am soooo glad the trip was a success! I am hoping to be at next year's! God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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