#38248 02-24-2005 10:15 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) |  "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Congratulations Robert and your family
How wonderful for you all, big celebrations in Libertyville I'm sure. Thankyou for your inspiring post.
I was very similar to you Robert, RH tonsil (remnant), very small primary but major lymph spread. I am 2 yrs out and doing well also. Like you, I believe every moment is precious. I live a quiet, peaceful life and I'm so HAPPY in myself.
Love and light to you all, from Helen
RHTonsil SCC Stage IV tx completed May 03
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#38249 02-24-2005 03:10 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Robert I am glad to hear the good news and happy to read at the bottom that you will still see someone at 3 or 4 months. It feels good to have those "all clear" checks anyway, so why not have one every 3 months!
At nearly 4 years for me, My ENT said 6 months....I'm not sure I am ready for that! I'll probably come up with an excuse to see him say maybe 4 months?
Nicki, Tell Tom that I joined my church choir at about 6 months out. My voice got pretty good but at least several notes lower and not much falsetto left (although that has gotten better over time). No problem, I now sing bass. The one thing that I haven't got back is my whistle.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#38250 02-25-2005 09:10 AM | Joined: Apr 2004 Posts: 50 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2004 Posts: 50 | Robert,
Congratulations. I am 10 months and so far so good. News like yours gives me hope. My doc just took me to three months and I am a little nervous about that. Great news. Thanks for sharing it.
John | | |
#38251 02-26-2005 07:24 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hey Mark, that is funny cuz my oral surgeon has tried to wean me to like every 3 months check up but I manage to get in there earlier every time! In fact, the last visit he asked if I would like to have a bed set up there. Smile!
I am having surgery on 03/08 for reconstruction on my flap and neck scar revision. Has anyone else had the flap reconstruction?
Thanks,
Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#38252 02-28-2005 03:21 AM | Joined: Aug 2003 Posts: 71 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2003 Posts: 71 | CONGRATULATIONS Robert & Family!!!
I say "and family" because this disease is not a "solo" thing. As the wife of a survivor I must say that every appointment/test/etc feel like they are mine as well. So, I can attest that your family feels the happiness with your good news just as much as you!
I must say though, just like the others, my husband and I both go through withdrawals if there isn't some sort of doctor's appointment at least once a month. Amazing how we came to rely so much on their words of encouragement. Great news though that your doctors are so confident!
Enjoy each and every day...
Lorie
Lorie/wife of Don, DX:8-7-03, Tonsil cancer left side stage III, IMRT x 35, 6 chemo (Cisplatin/Taxol), clear CT Scan 12-26-2003. Mets to both lungs & AML 11-6-05, mets to brain Jan 2006, mets to liver & bones April 2006, passed away July 20, 2006.
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#38253 02-28-2005 10:55 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Robert, congrats on the good report at one year out. Its nice to hear them say " cancer free" at each visit. Its also nice to be able to see the doctors at a longer interval. I'm sure your family is happy to hear the good news also.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#38254 03-01-2005 07:51 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Robert,
Thanks for sharing your great news!!! It picked me up a notch and when your only 5'7" It made me feel as tall as Mark!!!
Does this mean you have to continue to watch the Bears? You could get a feed for the Packer games and enjoy your Sunday afternoons a little more!!!
Do you want me to send you a cheese head?
Love you and your lovely family!!!!
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#38255 03-16-2005 05:19 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Robert,
I am so sorry I missed the great news but a very warm and sincere belated congrats to you!!
May you and the entire tribe have many more happy semi-annual visits!! I love you, too, dude.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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