#3801 09-23-2004 05:11 PM | Joined: Sep 2004 Posts: 5 Member | OP  Member
Joined: Sep 2004 Posts: 5 | I just thought I should let you all know that Christy is just so depressed about her grandmother and that is why you have not heard from her lately. Mom just had her fourth treatment of radation and they are stopping it already. They will reacess it in one week. Is this normal? The tumor stinks so bad,and she chokes all the time, which takes everything out of her. Christy and mom have a very special bond, she was the first grandchild and she has always been number one in my mothers eyes. I lost my dad 24 years ago and since then mom and I have been best friends. We have gone to bingo twice a week and Nevada once a year since then. I will always have these special memories of my mother, but I am not ready to let her go. The doctors were in this morning and I really thought there was hope and then they took it away. I asked if I should go back to work next week and they said no, they said she would probally never go home and that the cancer would take her. I am not ready to let her go and I know that I will never be, if she is to go from this horrible tumor, I pray she will go fast to be in fathers arms once again, and the pain will be gone for ever. This was so hard for me to say, but my heart bleeds to see her like this. God forgive me and take care of my mom and best friend.
Jenny
Jenny
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#3802 09-23-2004 05:46 PM | Joined: Apr 2002 Posts: 73 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2002 Posts: 73 | Jenny,
I am so sorry to hear of how things are going. Treasure the time you have now. I lost my best friend earlier this summer and while it was so hard to let go, I couldn't bear her suffering. What started as everyone being hopeful and hoping she could hang on as long as possible evolved as her disease progressed to where we could tell her it was ok to let go and truly mean it. I don't think you need to ask God for forgiveness for feeling as you do. I can't think of any words to lesson the hurt, just know that there are lots of people here caring about you.
ilene
ilene
SCC stage 1 1987, 1/4 of tongue removed, neck dissection, SCC stage 3 2000, another 1/4+ removed second neck dissection, radiation.
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#3803 09-23-2004 06:53 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jenny,
I am really sorry that you have this in front of you right now. You do not have to ask for His forgiveness because He knows how much you love your mother and how terrible this is on you and Christy right now.
I know there are no words to take away your pain right now but I will pray for His comfort and peace for you and your family during this horribly painful time.
God Bless,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#3804 09-24-2004 05:11 AM | Joined: Aug 2004 Posts: 217 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Aug 2004 Posts: 217 | There is never the 'right' time for one you love to leave this world. Remember that your mother was a gift from God in the beginning, and you are here to help her find her way to her true home. God loves you all, and He will not abandon you in this time of need. We will support you with prayers and whatever words we can summon to ease your pain.
When Tom's mother was fighting so hard to stay with us despite her pains, we had to let her know that we would be OK, and that she could rest. It was very difficult, but we do treasure those last prayerful months with her - she was a lady to the end and we know her peace is now endless.
Love
Nicki
Nicki, wife of Thomas
dx July 2004, SCC, Stage 4 Tonsil. Tx begun 8/4/04. Cisplatin/Xeloda x 4; IMRT 7 wks, 8/7 - 10/25/04 Modified Radical Dissection (right), Selective Dissection (Left) 12/10/04.
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#3805 09-24-2004 06:38 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Jenny, God bless you and Christie. You both have been there for your mother at this time of need just as she was during both of your youthful times when she picked you up and made that skinned knee feel all better. There is nothing else we can do in this world. You have done all you can to lighten your mother's burden, both of you, and I am sure she knows it. May the Lord comfort all of you in the future.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#3806 09-24-2004 07:28 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Jenny and Christie
I'll pray for you both to be given the strength that you will need, may the love you all share as a family help to guide you through this.
Prayers... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#3807 09-24-2004 01:07 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Jenny and Christie,
I am so sorry to hear your news,I don`t care how old we are, the bond we have with our mum is so precious. She is lucky to be so loved.
My heart goes out to you and your family.
May Your God Go With You.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#3808 09-24-2004 01:38 PM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Jenny and Christy,
My prayers are with you and your mom/grandma. She is truly blessed to have you both by her side. It is definitely the most painful thing to watch someone suffer. May God grant you comfort and strength.
God bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#3809 09-26-2004 03:29 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Jenny and Christy:
Gods will be done. It is indeed emotionally painful to lose a loved one. But, God works miracles and as long as there is life, there is hope. God bless and keep you.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#3810 09-26-2004 04:34 PM | Joined: Jun 2004 Posts: 155 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2004 Posts: 155 | Jenny and Christie
I know there is nothing I can say that can help. Especially as this already difficult road gets even harder. Please take some comfort in the many people who are thinking of you, and cherish the gifts you got from from the great lady you call mom and grandmother. I will keep your family in my prayers. Denise
Caregiver Husband Bob SCC tongue t2nomo Partial Glosectomy/neck disection 6/04 rad ending 9/23/04
Osteoradio-necrosis of the Mandible (ONJ) DX 6/09 Surgery 7/2/09 mandible resection/ several teeth extracted/ neck dissection NO FLAP and aggressive antibiotic therapy.
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