#37409 06-01-2004 02:55 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello All,
Met with the medical on'gist today. Any Chemo if I decide to take it would be purly pallative. She suggested Texol & Carboptztin (Cisptztin) but had reservations about it doing any good. She suggests repeat scans at 6 weeks and again at 12 weeks. She was honest an upfront. I thank her for that.
She ordered a cat scan of my chest and lungs for this Friday,June 4th. A MRI of head and neck for Monday, June 7th and a Cat scan on June 9th of my neck. Pick up all films on Friday June 11th and see the on'gist again on Tuesday, June 15th. Will have a much clearer picture than.
Her best guess is anywhere fron 3 to 6 months. Im betting much longer. I am a stubborn son of a Bitch!!!! Thanks again for all your kind words and support,
Love, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#37410 06-01-2004 03:28 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Dan
I am desperately sad to read your news. You are in my heart - your courage and determination are inspiring. I am sending positive energy to you and your family.
From Helen, with love
RHTonsil SCC Stage IV tx completed May 03
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#37411 06-01-2004 04:00 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Dan,
Pretty much crushed to hear that news. Hoping for all the best, and am betting on your side as to much longer.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#37412 06-01-2004 04:30 PM | Joined: Apr 2003 Posts: 13 Member | | Member
Joined: Apr 2003 Posts: 13 | Dan,
was sad to hear your news. Has anyone suggested photodynamic therapy. I don't know much about it but I am one to just keep looking for new things. I have heard it is usful for some people. Hope your scans go better.
shirley | | |
#37413 06-01-2004 05:01 PM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Dear Dan, It's good to have a plan! I think it's hopeful, time-wise, that your doc is scheduling tests to "see where things stand." Scott's docs didn't bother ordering tests because they knew he only had a few weeks after that third recurrence. Up-front and honest is best. I'm glad you and your doc seem to be on the same page. Stay stubborn!!!   Christine
Wife of Scott: SCC, Stage I retromolar 10/02--33 rad; recurrence 10/03--Docetaxol, 5FU, Cisplatin; 1/04 radical right neck, hard palate, right tonsil; recurrence 2/04--mets to skin and neck; Xeloda and palliative care 3/04-4/04; died 5/01/04.
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#37414 06-01-2004 06:13 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Dan,
I'm at a bit of a loss for words. Your spirit and strength is relentless, and we're all here to help in any way we can. Please email me anytime for whatever reason. You know I'm here for you buddy. Talk with you soon.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#37415 06-01-2004 10:21 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Dan
Take what ever treatment they offer.. that's the only way to defeat the odds..
prayers.. love and big hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#37416 06-02-2004 01:01 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2002 Posts: 80 Likes: 1 | Dan, my prayers are with you and your family. Lots of love your way!
JOAN
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#37417 06-02-2004 02:14 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Danny,
I am so sorry to hear your news. I wish wish wish there was something I could do for you. I have a luminaria in your honor at our Relay for Life on Friday night.
My thoughts and prayers are with you and your family, and all of your family here, too.
Sincerely,
Lisa in Ks
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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#37418 06-02-2004 02:54 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Danny, only God knows how much time each of has on this earth. I am praying for you and thinking of you....Keep Looking Up!!! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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