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#35751 12-22-2007 07:46 AM
Joined: Sep 2007
Posts: 24
nycgrl Offline OP
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Joined: Sep 2007
Posts: 24
Thank you all for your support and thoughts! we arrived yesterday and although the travel part was exhausting for him, we were so happy to all be together-he is even going to try some mac and cheese for christmas dinner!
anyway,.. he was told by the surgeon that the larynx would be removed, but there were definate options for speech, it's just we have no clue what was available, or what it involves ( not seeing the speech therapist for a couple of weeks) so i'm just now finding out what kind of options by doing alittle research on the net. eileen, i would appreciate hearing of your experience and how your life is now, if you would share that with me.
thanks again everyone, you give me hope.
emma


wife to Del,dx.4/07 BOT SCC t3n3m0 3rounds chemo (5fu,cisplat,taxotere,erbitux)35 IMRT tx.with weekly erbitux.finished 9/07. 12/07 biopsies +,surgery not an option.returned to palliative chemo 2/08. 6 tx.of cisplatin/taxotere,methotrexate 8 tx. He died Aug 20,2008, but lives always in my heart.
#35752 12-23-2007 02:19 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
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"Above & Beyond" Member (300+ posts)

Joined: May 2007
Posts: 632
Hang on to that hope Emma--it will see you through.
I living Del is, and will be, a beautiful thing!

Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#35753 12-24-2007 11:58 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Emma,
I am 6 years out from this surgery and have no real problems. Life is good. It has actually allowed me to eat many foods that I could not eat after radiation because I kept choking on them. Since I can no longer asperate food, if something gets stuck, I can massage it out of throat and cough it up. I was able to go back to full time desk job 8 weeks after surgery. I had a very easy time of it, no artery needed from arm and no skin graft.

There are several things I an no longer able to do. Swimming, boating, etc is a no-no. I miss this. I love the ocean. Showering is tricky initially but once you get the hang of it, is easy. In Health also makes a good shower guard. You lose almost all sense of smell unless it is directly under your nose. Bad for cooking, may affect sense of taste, but it didn't mine. Singing is impossible. No range left. I miss this also around the holidays. I was a second alto, now closer to base range. Voice will be anything from a whisper to low voice, but not full volume. Bad for crowded rooms but otherwise not a problem.

One other option for speech is the electrolarynx, the device that makes you sound like R2D2. You might want to look at the webwhispers web site for more info about laryngectomees. After holidays if you would like to talk to me on phone, email me with time and I will send phone number. Marliz in Pa and Tony ? in Saratoga have also had this surgery. I know Marlene had some problems and is not getting the TEP.

Your doctor and speech therapist should be communicating about how he will be able to speak after surgery. It is possible, he won't, at least initially, but get all details. Don't assume because he is losing his voice box, that he will never speak again.

Enjoy your Christmas and talk to me after you know more.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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